Tag: God

Sleepless at the latest precipice on our path – PIP, and hospital

I so want to be asleep right now but my brain’s awake with useless whirring energy. This week has seemed so long already. My partner was admitted into hospital on Monday night after a fall and worrying symptoms. He was “only” in til Tuesday evening and thankfully is now safe at home but more question marks are hanging over his complex health difficulties right now. We feel so lost navigating the way through to get him the treatment he needs and cope with the process.

On top of this we found out today – through a text message he received whilst he was in hospital – that a big chunk of his PIP (a Benefit paid to people with disabilities) has been taken away following a review he had a few weeks ago. No warning, just stopped; just a text message with no details and no support. We are waiting for the letter detailing the decision. It seems crazy as his condition has worsened so much since his last assessment but it was what I feared would happen, because of my own prior experiences with PIP assessments. This is what seems to happen to so many claimants. With this cut, he will lose his car, because he has it through a mobility scheme tied to the component of PIP they’ve taken away from him. We are both dependent on the car to get anywhere. I will now be housebound except for when I can afford door to door taxis as I am too physically disabled to reach the bus stop and can’t manage on and off a bus without help. He will be in a similar situation. I don’t know how we will get to his almost daily hospital appointments. £25 – £30 per day on taxis there and back is impossible on our budget. I don’t know if we will qualify for hospital transport. Thankfully there are a few weeks before the car is taken away. We can appeal the decision on his PIP but I doubt a new decision will be made before we lose the car. His other Benefits may well also be affected because the rates paid are linked to receiving a certain rate of PIP or not.

So at a time when my partner is already under utmost pressure and stress with his physical and mental health, a legal case relating to one of his injuries, anniversaries of painful bereavements and traumas, finances, and multiple problems involving lies and deceit from people we placed trust in (leading to the collapse of several projects that we so hoped would bring stability and security to us and another family member and the apparent loss to waste of hundreds of hours of work) – now this. Now that one bit of security is gone.

It is hard to know how to carry on. It is hard to know where to get the emotional and physical energy to do what we have to do. I don’t know how to act or respond seeing the person I love suffering, hurting, being treated terribly, being let down and abandoned. My brain kicks into gear with the adrenaline in some way and buzzes with lists of what we have to do now, different outcomes and scenarios. But my emotions can’t keep up. Nor does my physical body. Right when my partner most needs me and I most want to be there.

It feels as though we are trying to find our way on a path through a jungle. Each side of us is dense vegetation and tall trees we cannot see through. We work our hardest at following the path, staying on the path, walking onward. We cannot see far ahead as there are always blind bends. Beyond each blind corner we don’t know how the track may twist or split. Even trying to be prepared for each possible eventuality isn’t enough. There’s always a stone, a thick fog, a sudden precipice you couldn’t see. Worse still, sometimes there are gaps in the foliage and you see through to sunlight and in the distance, a view stretching ahead of a safe and beautiful place. You work out the route you need to take on the rocky path you’re on right now, to reach that place, and your steps are a little lighter. Then without warning, a branch bends down from the trees surrounding you, coils round your middle, it drags you high in the air, spinning, crushing you, and then flings you as hard as it can and you fall back into the jungle again. Any sign of the safe place is gone. You find yourself beside another path but you have no idea what path it is; certainly it’s no longer the one you had worked so hard to follow.

It’s hard to keep on getting back on the path and you lose hope that any of the paths really lead out of the jungle. You almost know that the moment you think of the beautiful place, a branch will grab you and fling you as far away as possible from everything that have you hope.

That’s what it feels like. It’s self indulgent to express it but that’s what it feels like. Focusing only on our pain does no good, but that’s what it feels like.

We do still have homes. We do have the chance to appeal this decision. We can choose hope. We can do all we can to save money. We have so much more than many people and our lives are so different together. I can at least be here always, for my partner. We can trust that Jesus is with us, beside us, reaching for our hands.

I just needed to get it out tonight. Thank you for listening.

Ginny xxx

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“…And indeed it was very good.”

After my earlier panic, to ground and orient myself I’ve been meditating on some of the Scriptures that can be read at the Easter Vigil Mass (we are not going to church tonight and will attend the Easter Day Mass rather than the Vigil). One of the passages that can be read at the Vigil is the first chapter of Genesis , that is to say, the very start of the Bible. Fittingly, as we celebrate at Easter our new birth in Christ, sharing His Risen Life, our relationship with God restored by His gift to us, we read in Genesis how we are God’s creation.

However we interpret the creation narrative in Genesis, I think it is very clear that God created for good and created in love. This particularly hit home with me today and chipped away at my constant fear of my own inner badness.

God created light, dark, sky, earth, sea, sun, moon, night and day, every breathing creature, every plant. He created, “and it was so”; he looked “and saw that it was good,”. We are assured ten times “and it was so… and it was good”. Then, to have stewardship of all this good, God created man and woman. You and me. After creating all this good, would He make His stewards bad? Of course not. He created us good. Not only did He create us good but “God created mankind in His image.” He made us in His image and gave to us stewardship of all His wonderful creation, for our joy, for our nourishment, for our good. He looked on us, “and indeed it was very good.”

God is the same yesterday, today and forever. His love never changes or ceases. He created us good, for good. You and I are first and foremost good and loved by God. Loved so much that He created us in His image. Loved so much that however much we mess up, He still desires our good, and calls us back to Him, through His own Son’s suffering, death on the Cross and rising again. God wants the best for us just as He wanted the best for us from the first moment of creation, from the instant He conceived us in His loving heart and brought us into being to be loved by Him, to love Him, and to love one another as He loves us.

And indeed, it is very good.

Happy Easter.

Ginny xxx

For you alone and all of you

Today is Good Friday. Today at 3pm we commemorate Our Lord Jesus’ passion and death for us on the cross.

It is more than a commemoration. As we pray, as we venerate the cross, as we approach the altar and receive Jesus, Body and Blood given for us, we take part in the sacrifice He makes for us and the redemption that flows from His Sacred Heart.

On a Good Friday several years ago, the Priest gave the briefest and possibly most powerful sermon I have ever heard. After the reading of the narrative of Christ’s Passion he simply said: Jesus did this for you, and He would have done it for only you. That very simple amazing truth about the cross lifted me right into the arms of Our Lord.

At the Cross, if I only stop there and look at my Jesus, there is no hiding and no pride. None of my sin, need, failure, weakness, pain, despair, is bigger than what He did on the Cross. And none of my pain, longing or grief is too small or stupid for Jesus to care about either, even the things I try to hide from everyone because I feel they are so childish or bad. Jesus did this for me and for all of me.

It is really hard for me to comprehend a love that wants all of me. So often I set myself apart, sure that this love cannot be for me really because I am too bad inside, sure of an angry God and that I deserve punishment. As a child my abusers convinced me utterly of my evil, the awful things I did and would do and the awful intentions and desires that were inside me. They set up a world where I believed they were the only ones who knew the terrible person I really was and the only ones who could stop the terrible consequences if I did what they demanded. They proclaimed their love for me but looking back I don’t know how I understood this love or how the supposed love was shown. In a way might it have been simpler if they just outright hated me?!

The understanding of me and of love that this left me with is so far from the love of God. He created us in His image. When we messed up, He sent His Son Jesus, right into our dark and confused world, drawing us back to follow Him to God the Father. He didn’t demand our perfection. Rather the opposite. He takes on all our imperfection, suffers and dies for us, and rises again, so that weak as we are we can do the same and follow Him to His Father’s house. The fact Jesus wants me, only me, all of me, is something it will take me a long long time to truly understand. The Cross is a good place to start and ask Jesus for the grace for His truth to replace the lies and confusion in my heart, so that I can lay down all of me and let Him love me, even though for all the years I have so wanted to believe, I don’t know yet what this kind of love is.

My prayer for you today is that Jesus show you tenderly how He loves all of you.

Ginny xxx

With thanks:

Image 1 from Mount Carmel Edmonton

Image 2 from Slideshare.net

Image 3 with thanks to Bertha Chelemu from Sermon quotes.com

Gesthemane

Today is Holy Thursday, or Mandy Thursday. Today we remember – and share in – Jesus’ institution of the Eucharist, the Last Supper where He gave His Body and His Blood for us, so that we should never be apart from Him again. We also recall Jesus’ prayer and suffering that night in the garden of Gesthemane. We wait and watch in prayer.

I was not well enough physically or mentally to go to Mass tonight and watching at the altar. I have been trying to pray, read, listen at home. I wanted to find some words to say, some hopeful answer or some words to write here…. and I can’t. I don’t know what is happening to me. And I feel so guilty. In the liturgy of today, my God and Saviour Jesus has just given the most indescribable gift to us that makes us one with Him forever. He is about to suffer death for us. For me, so that I am lifted up with Him in His resurrection to God. And what do I feel? I feel empty, blank and cannot see for panic and hurt and darkness. Right when I should be thankful, grateful, filled with hope. Maybe what I most hate about this illness, and about myself as I am with this illness, is that unbearable emotions block out everything even what I most believe to be truth.

Jesus asks his disciples “Will you not watch one hour with me?” They also struggled. They were overcome with exhaustion, confusion, grief and fear. Jesus went away a little distance to pray and returned to find them sleeping.

Will you not watch one hour with me?

Here I am, Lord Jesus. My Jesus, I am here, but I do not know what to do or say. I am with You, yet I fear. You give Yourself to me, yet I lose hope. You died for me, yet I deny You and forget You when I despair and when I am consumed by anger or fear. You call me Your own, but I do not know who I am and I’m terrified of what is inside me, of my “others”. You are Love, You made me to love, but when it matters most, I do not feel.

Right after the Last Supper, came the darkness and agony of Gesthemane. Christ was still to go through His ultimate suffering and sacrifice. There was still the Cross, and still the Resurrection, without which everything before would have been meaningless. The way was not instantly rejoicing and light and the disciples did not yet understand what was to come and that Jesus would be risen from the dead. But the darkness and confusion did not mean Jesus’ love was gone away. It did not mean He had abandoned us. Rather, in suffering His love was about to be poured out for the whole world. Everything and everyone was part of His redemptive plan.

Please Lord Jesus, help me know that when it is dark You have not abandoned me. Please help me lay down now the terror of what I am, the terror that I am beyond Your help and beyond Your love. Because that denies the enormity of what You did for us, when I think You came for everyone but me. Here I am Lord, all of me. Please give me the grace to know You came for me.

Xxx

Resurrection eggs

I have been making some little gifts for the elderly at the Christian day centre where I volunteer. This isn’t my own idea – I came across a similar project on YouTube for “resurrection eggs”. I bought a set of plastic eggshells from a craft store and filled the insides with not only some chocolates but also a Scripture passage I wrote out, a different one for each person. There are a few different versions of this project and often pictures are put in numbered eggs which are opened to tell the Easter story to children. For the day centre I chose to include passages that share God’s mercy and that we are tenderly loved by Him. Please God it will bring some encouragement to our visitors next week (we still celebrate the joy of Easter beyond Easter Sunday!).

Copying out the passages today gave me a little bit of help as I have been extremely low and feeling I’m sinking, not able to carry on. I need to keep reaching out.

You can find the YouTube video by Taming the Frizz, that inspired me HERE .

Ginny xxx

Trying not to choose destructive “safety”

I’m buzzing with anxiety and I don’t know what about. There are loads of things I have been really worried and upset about. But I can’t work out what’s bothering me right now. My stomach is knotted around a cold ache. An actual physical pain. My head feels the same as when my thoughts spiral but there aren’t any thoughts I can catch, just dizzy blankness. My legs are shaky and I’ve lost balance several times. It’s different from the dizziness and fainting that comes with the POTS. I wish I could make it stop. My tablets I regularly take in the evening usually sedate me a bit but it isn’t working. If I could walk for ages, or go running, maybe it would channel the feeling out of me (but I can’t since I can only walk a few yards with crutches).

If I knew why it would help. It’s scarier when the feeling is separated from thoughts. The emotional state seems to have a tighter and limitless hold on me even if rationally I ought to know it will pass. An emotion that shouldn’t be unbearable becomes so because of confusion, fear, and I realise now, the dread that is wrapped up in the associations of previous experiences of this emotion (abuse, being trapped, feeling guilty, feeling unable to stop terrible things happening because of me).

I desperately want to numb it and stop it. Drink, or cut, or binge, or take enough tablets to knock me into sleep. That seems to be the default response my mind and body make. I’m asking God to help me stay right here and feel and know I am with Jesus. This week leading up to Easter we are particularly close to Him in the suffering He went through so we could be with Him. In this small struggle that feels big right now, He hasn’t left me. I will keep on reaching out for His hand, praying and reminding myself of His goodness. Every moment is His way of coming to us now and sometimes we are with Him on a steep path, a storm or a lonely place. What matters is we are with Him.

It seems I’m saying what I really want to believe, rather than give in to the false security of numbness through destructive actions.

Jesus, please hold me, Mother Mary, please help me.

To be continued…

Ginny xxx

Easter crafts – letting the light shine through

We made stained glass window pictures this week at the day centre where I volunteer with elderly people. In a small group we made three pictures – loaves and fish, the Cross and the sun rising above a tomb with the stone rolled away. Here’s the Cross (please excuse the scribbling where I’ve removed anything that could have identified the location; I’m probably being over-cautious but still…):

I made the templates and then we laid them on laminator pages, filled the designs in with tissue papers then added the top sheet and laminated them. This gave them a shiny finish. Once cut out we attached them to window panes to let the light shine through. My inspiration came from a YouTube video of Christian seasonal craft ideas.

It was trickier to do than I’d expected and tested my patience! The tissue paper did not stay in place easily especially when people with limited movement were handling it. Too easily it could be knocked, or the static between the tissue and the laminator sheets pulled pieces out of place. Surprisingly perhaps, all the clients enjoyed it and persevered. It helped that this week everyone seemed curious and wanted to be involved. With clients who often feel depressed or otherwise unwell, this isn’t always the case. This week the clients’ enjoyment encouraged me to keep going even when I thought everything was going to go pear shaped.

Thanks to one of the other staff members we were able to read a bit about how stained glass was and is made and where the colours come from.

We were very happy to do an activity strongly rooted in the hope of Easter. Of course compassion and generosity and love underly everything we do with the clients and we almost always learn, discover and receive blessings as well. However we wanted to do something explicitly exploring God’s gift to us at Easter. In our pictures, each side of the central Cross, the bread and fish represent Jesus’ presence amongst us, His feeding us, His Body given for us 2000 years ago and still on all the altars of the world; the empty tomb and rising sun represent God’s Son Jesus rising from the dead, as He is with us on earth so He is lifting us up to Heaven to be with Him where He is gone. The Cross itself we decorated in bright colours not dark. The Cross is deepest suffering but also and inseparably, our only hope, because there Jesus restored the ruptured relationship between God and man, so that we can now joyfully call Him Heavenly Father. There God’s light shines through to heal our broken hearts.

This Lent time seems to be passing faster and faster for me and I’ve felt I’m grasping at desperate moments to pray between crises, responsibilities, pain and dissociation. It was important to me to have this little time trying to reflect on the Easter promise with those Jesus loves so much, the frail and lonely. Thank you, Lord.

I’m praying for moments of peace throughout your every day.

Ginny xxx

The peculiar significance of treacle

Every year I forget how evocative certain Christmas smells are. Not just the more obvious things like candles and oranges and mincemeat and brandy, but certain specifics. It was black treacle and spices the other day, as I was making gingerbread dough. Suddenly as I counted out the syrupy spoonfuls I was taken back to being stood in front of another cooker, aged maybe 7, stirring the pan dissolving the sugars, with my mother watching. Chain smoking, of course. A knot of emotions expanded inside me as they did then. Excitement for Christmas. Some kind of enjoyment of doing a grown up thing. Delight at wanting to make pretty biscuits. Wanting to get it right and please my mother…. well, the desperate need to get it right, impeccably following the process she had shown me. That meant tenterhooks and anxiety and churning emotions, too often teetering on the edge of me ruining everything again (I thought). One mistake, one deviation from her instructions, her watching would explode into anger, ridicule, accusations and threats. Hours of shouting and violence would follow. And everything, I had made her do, and each time I’d have that sick terror inside that this time it was over and the threats were being fulfilled. Looking back and seeing how little was needed to tip us into that disaster, it’s bizarre. Laying a biscuit onto the baking tray in the “wrong” way (ie not the precise arrangement she required), not getting the bow on a package right fast enough, touching the wrong switch on the oven – even simply letting any of my anxiety show. It sounds almost as if it should be funny. But it isn’t funny when someone has you isolated, under their power and in fear; not in fear of them but in fear of yourself. Because one sure thing to me at the time was that it was my fault.

So, standing there measuring the treacle it all came back. As I’ve been making the biscuits over the last day or so, I keep being catapulted into so many emotions and suddenly reliving snatches of good and bad … And to tell the truth I’ve been pulled into the bad too much. Exhausted.

I’m fighting it, because there’s no way my abuser’s having this Christmas. This Christmas is for God and the present and my fiancé and it’s about all the good we can do and are thankful for today. I speak briefly, quietly to God as I roll the dough, cut, bake , ice, package these cookies. I’m pushing through the dissociation to do all I can to hope for this Christmas and for every flashback find twice as much I’m thankful for today.

Ginny xxx

O Christmas Tree, O Christmas Tree…

I’m going to start to put up the Christmas tree later. Usually I’d be looking forward to this. This year I’m not. I can’t seem to feel any excitement or happiness or hope. it’s very hard to get any creativity going even when I’ve been making presents for people. I feel guilty for not being joyful, as it feels ungrateful for the good people I have around me and most of all ungrateful for God’s gift of the Christ Child to us. Feelings can’t easily be changed but at least if I can’t feel I can try to do, so I’m going to make my preparations for Christmas Eve and Christmas Day and do as many things I can to bring happiness to other people, completing each tiny task with love, out of thanks to God.

So, the tree is going up later. This will be the first time my cat sees the Christmas tree (I did have a foster cat staying with me last year but it was a different cat) so it remains to be seen will her reaction be. Will I find her half way up it or flinging the baubles across the room, I wonder? It’s an artificial tree so hopefully the appeal won’t be as strong as if it were a real tree. Just as well I don’t have a puppy, where this might be the result:

(Not my cartoon – I just stumbled across it and I’m afraid I don’t know who the artist is!)

When do / did you put up your tree?

Ginny xxx

So far beyond the limit

I am so stressed and strained beyond the limit. I’m trying to care for my fiancé. I can’t. He’s yet again been discharged from A&E, this time with DVT having been told he could have a pulmonary embolism at any time. No plan in place. Vascular problems, tumour, hernia, unidentified lump in his stomach, knee operations, diabetes, hips going to need replacing… how much more, how much longer Lord? Why? I’m screaming and crying inside. How much worse he must be feeling. Again and again after every emergency and discharge we are no further forward. All the risk and pressure falls right back on us. I can’t do it. I’ve been overloaded for weeks or months. Way beyond the breaking point. I need it to stop. Already I’m drinking with my medication to try to get knocked out. I cannot cope with yet more emotion and pressure. Cutting, bingeing, purging, everything is worse. I have no mental health support now, nor does he, so what can I do? Time has slowed down. I’m hearing things. I need it to stop. Please God, I want to say I know you will answer and not turn away from us forever. But I can’t see You or hear You or feel You. It’s been a long time that way. Xx