Tag: MBT

Crashing

This is a hard post to write.

I have not been coping physically with my job for a long time. I have really tried to ignore this. Since I started it made my pain levels worse and ever since they have kept increasing. I kept hoping it would at least stop getting worse and maybe that I’d get better at coping with it. I wanted to be able to do it. Be some kind of normal. My job sometimes helps me mentally, engaging in something creative and focusing on helping customers and giving the best service I can. It takes my focus outward which I’ve long believed is really important in staying well. The tactile aspects of my work, handling the different fabrics and trying to create attractive displays, can in themselves be grounding and soothing. Additionally, it’s an area where I can try`to do some good and not feel useless. (I know that’s something I need to work on, how connected my sense of worth is with others’ outward perception of me, but I can’t deny it helps for the time being.)

Now I’ve come to the point of crashing completely. In the last 3 months in particular my pain and physical weakness has increased faster. Since around the time of my operation I guess marked a real down-turn physically and it was to be expected really that  my fibromyalgia symptoms will be worse for a while afterwards. Everything is worse really, my back problems (I had a slipped disc years ago), arthritis…

I know I haven’t really talked about it so maybe this sounds weird. Whenever I talk about my physical health I worry it all sounds stupid, nobody would believe me, I’m a fake and I should just get on with it and everything’s my fault. (There’s a lot I have to work on there too, I know.)

I feel like I’ve crashed suddenly. Gradually it has got harder and harder to – move, to put it bluntly…  Getting harder to get through the day….harder to be able to get home, having to sit and rest, and crumpling as soon as I get in, lying down most of the evening… Today I have had to spend most of the day lying down. Pain and shakiness in my legs makes any standing and walking really hard. My legs are cramping and jerking out of the blue. I can’t feel in my right foot normally and at the same time the pain is really bad through my lower back and hips, worst on the right… I’ve had all this before although not as bad, but I am very scared right now. I feel scared and shaky and lost and so tired. I slept a lot today too. My support worker came this morning and I was so tired I was struggling to literally get words out.

So I find myself admitting again that I am probably going to have to leave this job. The physical deterioration from trying to meet its demands is too much. I have tried to look into reducing my hours but it does not look as though this will be possible. I;d have to massively reduce them in any case. My manager has been kind and understanding in her approach but has to follow the sickness absence procedures set down by the company. Since I have been off sick 4 times within a 6 month period, this is flagged as a problem. I can well understand that it is not fair to colleagues to be off too frequently and I know myself that I am struggling more and more with daily tasks, which is increasing my anxiety and in turn my psychotic thoughts and my fears about what colleagues are saying and thinking about me and making it harder to cope with the hallucinations and all the mental struggles of every day.

Outside of work the effect is great too. Not only are the pain and mobility problems an issue, but I have no energy or coping resources left to manage day to day tasks like keeping my house clean, keeping in touch with people, doing positive things to bring a balance to life outside work, or perhaps most importantly right now, giving the energy to therapy and recovery that I need to. The months I have left with the PD service are precious and working on making use of my individual and group sessions is demanding. I want to be mentally “present” for it, not shut off protecting myself because I’m desperately trying to cope with pain and utter exhaustion.

I’m going to be referred to Occupational Health so I await to see what they will suggest.

ergonomic occ health

I also have to follow my doctors’ and my support worker’s advice. I believe they would all prefer me to reduce my hours. My support worker definitely thinks so.

The one thing that ironically, in a twisted way makes this situation possibly not quite so bad, is that I may actually not be worse off financially working fewer hours or not working at all. I want to talk about this more in a separate post shortly. It’s a bizarre situation that doesn’t sit well with me. At the moment I am struggling in pain and making myself physically worse every day, working part-time, earning just above the minimum hourly wage.  I receive less than £10 per week help towards my rent, I am not entitled to any help at all with things like council tax*, and although I was initially assessed as eligible for a small amount of tax credits, this decision has now been changed and I have been told that I am not entitled to any.  Now, I strongly believe that it is morally right to work as much as I can and not to expect to receive handouts when I could be earning myself. However, what I cannot get away from is that on my current earnings whilst I am working as many hours as I can (well, I have to admit now, more than I can) I cannot live. I do not have enough to cover basic bills and simple living costs and I would not be getting by if it were not for regular help from my family and even occasionally my very good friend who has lent me money for grocery shopping when money has been tightest.

Not only can this situation not go on – I am over 30 now and I simply cannot go on needing financial help from my dad; I have to support myself – but the cost of this job physically is just too much to go through to still not be able to live. It is painfully ironic that because if I were not working or were working fewer hours, for example for a few months or so whilst I complete my therapy, my financial situation would actually be more stable because of the greater help I would get towards rent and living costs. That makes me really really uncomfortable and it isn’t right. Yet I have to be able to live.

It isn’t the main factor that has led me to this point. If I were coping physically I would keep going and if I could I would see if I can increase my hours. But I’m forced to accept that just isn’t so and physically things are not good right now.

I feel really worn out and vulnerable right now. The last time I was so low physically, about 7 years ago, I didn’t feel so afraid or sad. I wonder why that change has come. Perhaps I feel more responsible now. Perhaps I am sadder about potentially leaving my job because there are aspects of it that I genuinely like this time. Perhaps I feel more of a failure that this has happened again.

I need to focus on the good things that could come out of it if I do have to leave. My health problems are not life threatening or anything that serious and so many people are going through much worse, much more medically severe, perhaps without friends to help them and understanding doctors. In moments I can see that there can be ways that in the next few months I can try to turn things around.

I don’t want anyone to feel bad for me. Tonight I just needed to get all this out and admit that I’m scared.

Thank you for listening. I can’t imagine where I would be right now without this blog and the support of you lovely people who read and care and comment. There’s so much more I should say on that. I hope you know how much you mean to me. Hugs xxx

Ginny xxx

(*apart from the 25% single person occupancy discount. For non-UK readers, council tax is a roughly monthly fee payable towards local government spending like policing and other emergency services, refuse collection, some elements of care for vulnerable people, etc. Most working adults pay council tax. The amount payable depends on the value of the property you live in.)

Image not mine, sourced on the ever useful Google – I am afraid I do not know the artist (it says in the top left I believe but I was not able to expand it to read it.

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Pop goes the weasel…

Do you ever have so many things in your head it feels ready to go “pop”?!

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In therapy group on Friday, I felt I could identify really strongly with what a couple of other group members were saying. We talked about so many themes that are really pertinent to my life right now. My thoughts started spiraling and firing off faster and faster in my head and I felt I couldn’t keep hold of them all. I wanted to write them all down right after group as it seemed so important they didn’t get lost. There were so many things I wanted to ask the group members.

I often get spiralling thoughts. In my 1:1 therapy we identified this often happens when I’m starting to experience a strong out of control emotion. The spiralling thoughts are somehow safer or more possible to name than the emotion. Focusing on them can suppress some of the emotion. If I can’t – like in group last week where they were just too fast and I was trying to stay focused on what others were saying – the emotion intensifies and is really uncomfortable, though I can’t name it or understand it. I just know I feel panic. I’m working on trying  to sit with the emotion and explore that rather than plunging straight into compulsively following the thoughts.

Interestingly, my thoughts used to do something similar when I was studying. I’d frantically try to get them all down. They seemed important. Sometimes they were and sometimes they were not. But it was often really hard for me to explain the links between them to other people or get them down coherently.

Writing this, it’s occurring to me – does this sound like I experience manic episodes? I have never felt as though I have manic periods in terms of hyperactivity or boundless energy but can manic episodes affect your thoughts alone? The spiralling thoughts can stop me sleeping and if i miss any medication doses at this time i can end up going all night without sleeping. Though the thoughts take the focus away from the uncomfortable emotion at first, eventually it returns, often more extreme than before and together with a lot of anxiety and physical exhaustion.

After the spiralling thoughts have squirmed and pushed their way round my head for a while, it’s as if part of my brain shuts off. I feel frozen inside my head. It’s a huge effort to fight to interact with people and speak and respond appropriately. I can’t bear the emotion and spiraling energy. It hurts. I can barely understand what’s happening round me. I want to get out. Go home, shut off and curl up somewhere safe, or have someone hold me (though there’s almost never anyone. ..) If anyone talks to me and I’m required to interact I am likely to somehow jump to irritation and frustration, though it isn’t really irritation I’m feeling inside.

I’ve never talked to my therapist about the idea of manic states but perhaps I should. Do others with Borderline experience this kind of thing, I wonder? Do you struggle with this?

It’s been worse in the past week or so because I’ve had more stress with my Tax Credits being stopped and consequent further financial panic. I’ve also been exhausted from low physical health with a lot of pain. Every day off has been taken up with hospital appointments and trying to sort out my finances. I’m worried I won’t be able to keep up my job as I’m struggling with the physical aspects of it and it is also very discouraging that pushing myself to the limit of what I can do to keep working, I’m left without enough to meet basic expenses. I’m so fortunate I have a very good friend and a family member who are helping me from time to time. Without them I think I’d have ended up on the street by now.

Ginny xxx

 

I wish we knew we’d get to the end of this together

I feel so sad today. Too many people are leaving in all areas of my life.

Someone has left our therapy group and will not be returning. I can’t post too much about it so as not to break confidentiality. I’m scared for her. We don’t know why she left. We did not get to talk with her about it because she stopped coming suddenly a few weeks ago and then the therapists told us today that she isn’t coming back. I miss her. Already. She saw herself as so bad but clearly had so much good about her. I really really wish we could have helped her. I’m scared for her – for what will happen to her, where she’ll get help and what she may do. I felt a lot in common with her. Often she spoke what I was too afraid to. She had been so so hurt by terrible experiences in her life. I so wanted to keep her safe but feared she was so hurt and kept running into so many circumstances of further pain and not being able to trust people, that she would not be really happy this side of heaven. I have to accept her decision and know I can only give her into Our Lord’s hands and pray for her now.

In the last couple of sessions people have been leaving group early because it has been too distressing or unhelpful for them. I panic when someone leaves. Or people withdraw and don’t want to talk anymore. Again I panic. I don’t want anyone else to go away. So often it seems to be my fault and so often I’m flashing back to being a child and my mother threatening to go away because of me or that she and my dad would be taken away because of me. ..or to the times she stopped speaking and I couldn’t elicit any response or her “absences”… and I wish, please please don’t go away. I wish we knew at least in group that we’d all get to the end of the course together.

I miss N, I miss two other people I thought were close and I’ve lost in the past weeks. I miss the hope there was in the existence of that relationship that I could do some good for them or be needed. I miss what little sense of safety there was that I wouldn’t be left that time and wasn’t doing harm.

I miss any sense of there being a few narrow circumstances at least, where I could think I did a good job or the right thing. The last part of that was lost with my failure in my last job and the loss of so many important relationships.

I cry and cry again but it doesn’t go away.

Ginny xxx

A shaky week

This week I planned to get all caught up here on comments and visiting your blogs. However as so often happens, things took a different term and I seem to be as useless as the proverbial handbrake on a tortoise. And moving at a similar speed too!

This hasn’t been a very stable week. I had a meeting with my new support worker, a difficult consultation with my GP, two relationships breaking down very painfully, an important but emotional group therapy where something that occurred brought flashbacks of a frightening incident in my childhood for which I feel responsible. Also I got some very unexpected news and had a conversation that seemed to throw everything. I’ll post about it in due course once I’m more able to cope.

Not big things in the grand scheme but I’ve got behind again. So once again, I’m sorry for being so slow to answer messages. I care and I’m praying for you and I’m sorry for how I struggle to write.

Ginny xxx

Trying to be curious about trust #1

As you may know if you stop by regularly ( 🙂 thank you lovely people!!) I’m finding it very hard to trust the personality disorder service at the hospital (where I go for therapy) at the moment. It has become harder and harder over the last few months, in part due to repeated occasions where, in my experience at least, I’ve been let down, not had the promised support, or been turned away when in desperate need of help. I feel they do not believe me and do not think I deserve help and the more I’m in crisis the more they don’t believe me. Everything that happens confirms this now. In my last care coordination appointment I felt again completely dismissed, not listened to and that what was recorded on my care plan did not reflect what I was going through or needed, until I’d insisted time and time again that my care coordinator write what I actually said rather than re-phrase it in a way that minimised and avoided a lot of the issues at stake. Aargh….

I can’t explain it more than this right now because I will get so angry and out of control. Plus you’ve all probably heard me go on about it so much you’re bored 😉 ! Sorry.

I’m trying to be curious about my feelings about trusting the service and how they see me, as Mentalisation Based Therapy focuses on this and trying to be curious and open to different feelings and uncertainties about what is in our mind and other peoples’.

Right now, although I can try to examine different possibilities, I’m certain in my heart that the service don’t believe me. This doesn’t apply so much to my 1:1 and group therapy sessions. In some way the group feels honest and safe. Perhaps it’s something to do with my commitment being to the other people in the group, listening to them and being there for them, present with them, and sharing honestly as much as I’m able, rather than it being a relationship just with the service or the therapists. It applies more to when I need support between sessions, or when I’m in crisis, or talking about support outside therapy with managing daily life, or in my care coordination appointments.

After the experiences I have had so far, I am not sure what would now reassure me that they did and do believe me and do want me. I got on to thinking about how my recent falling out with a close friend N. involved my absolutely unchangeable feeling that she didn’t believe me, didn’t really want me, didn’t think I deserved help, and I was just a burden and irritation. I don’t know what would convince me otherwise (except, just perhaps, if she had come to help me when I was at my worst, in some of the times she was adamant she could not or should not come).

Not being believed and not deserving help is a big theme for me. Ultimately, I do it to myself too, because I can’t really believe myself. Some of my psychotic symptoms feed into that, with the voices in and outside my head telling me I’ve lied, I’m a fraud, that everyone knows and is thinking and saying I’m a disgusting fraud, cheated people to get help, and no matter if I may think I want to be good and try to do good, there’s all the bad things in me really and everyone else knows and I’ll hurt everyone in the end. Only self-harming in some form quiets this.

In my last 1:1, we talked about my recent falling out with N. We started going slowly through my feelings and thoughts step by step from the beginning of the day things really fell apart between us. We didn’t get very far through. Nevertheless it brought back a lot of the feelings of that day. I’d been feeling very bad about things I said and how things were left at our meeting and in our exchanges the week after (since which, we haven’t been in touch – I couldn’t anymore and felt she didn’t want to either, really). I’d been trying to write to apologise. But in the 1:1, what was even harder than this was that guilty as I felt (and still feel), a lot of the hurt is still there too.

As the memories of these feelings, and more of the feelings, surfaced in the 1:1, I suddenly felt sure that my therapist must think I’m a horrible, childish, needy, jealous, selfish, demanding, nasty person who thinks terrible things about people. Then I started thinking these things about myself together with feeling guilt, disgust that I was so evil, and worry about what would happen to my relationship with my therapist now she thought these things – I couldn’t say what I thought would happen at the time but now I think it was feeling that, oh now she’s started to realise that I really am bad after all and she’ll leave me and not want me around any more.

I was certain about what my therapist must think. Just as I was/am certain about what N. thinks about me. It was actually very hard for me to think curiously about what N. (or my therapist for that matter) would feel. I spend a lot of time certain and horrified about what the people I’m interacting with think about me, and feeling bad for what I am (because of what they’re thinking), what I cause, and the feelings that are then in me, confirming my self-disgust and self-hate. My self identity is somehow, in a way I can’t yet express properly, bound up with what I am certain the other person is thinking about me. My own feeling follows immediately being so certain of their thoughts. I am not necessarily at all able to access beforehand what I am feeling, and I am not necessarily able to think about what the other person is feeling (separate of me, as opposed to being convinced about their thoughts about me).

I am not necessarily bad at picking up what other people are feeling. Actually, I can be very accurate in it, and sense it before other people do. I’ll post about that separately and will put a link here when I’ve posted. However, in these situations, I’m entirely sucked into the certainty of their thoughts.

I am not at all able to “mentalise” – to reflect and be curious about what is in their minds and what they are feeling and what I am thinking and feeling. There is no possible questioning or genuine entertaining of different possibilities about the other person’s mind. I am absolutely certain of their thoughts about me and I have absolutely certain thoughts and feelings as a result. Even though I may at some level be able to come up with a distant idea of other possible thoughts that could be in the other person’s mind, it is completely disconnected from my beliefs and emotions.

Written down like this, it is quite easy to see that this could lead to or be part of my psychotic experiences. I am certain of other people’s thoughts about me. The voices repeat them to me. I feel disgust and guilt and horror of what I’m doing to people. Somehow I become linked with the thoughts I think the other person is having and I am all those horrible things.

I am starting to wonder whether I am actually having the thoughts (which I attribute to the other person) myself, and having the resultant feelings myself, but I am unable to recognise them or feel them in myself, and then for some reason attribute them to the other person as though I know for sure that they are thinking these things. Really they are just my own thoughts or feelings about myself.

Perhaps my certainty nobody believes me or wants me and my resultant inability to trust, is in fact simply nobody else’s thought but rather just what I think of myself – and the fact that I cannot trust or believe myself because I always doubt my own motivation for good or evil, because I have no identity except what I find in what I think are others’ thoughts.

I don’t know quite where this came from. Certainly my mother’s very unwell beliefs about thoughts and emotions during the time I was growing up, clouded my learning about my and others’ feelings and thoughts and the demarcation between them. Her deeply psychotic beliefs were pervasive and persistent. She believed that I knew exactly her thoughts even in advance and when I did not, she told me this was deceptive; she believed she knew my thoughts and intentions; she frequently presented to me my intentions as malevolent and manipulative in incredibly complex ways, when I was unaware of any such motives or thoughts (precisely because they didn’t exist, but I didn’t know that as a child); she made inconsequential, morally neutral actions (such as being able to do some particular thing or not) have a moral value or manipulative power (“repeatedly punishing her” for example); she perceived my emotions as controlling her and done to her (unless they perfectly matched hers); and this was coupled with dire threats (including her suicide, my father’s death, the family breaking apart, my parents being taken away) because of my emotions and thoughts – and of course, with the abuse.

I don’t know quite how to unpick that to find out how much does it explain how I now feel about others’ thoughts about me. Maybe I don’t need to and just need to find out how to change my certain, set-in-stone thought patterns now.

Oh my days I’m tired now and I need a hug. Think I’m going to have a hot bath and curl up under my blanket when I get home.

Ginny xxx

Group and no more trust

Tomorrow is MBT (mentalisation based therapy) group. I don’t know whether to go.

All trust I had in the service has gone. It’s been completely wiped out by the lies and let downs of the past months, the proofs they don’t believe me, the tricks, the cuts that open me more and more vulnerable then leave me with nothing and noone.

I don’t really want anything to do with a service that does this, but I’m desperate and have nowhere else to go. I’m desperate for help but it’s denied, it’s promised then withdrawn, or I’m deemed not in need or not believed. I want to do the therapy but I can no longer go forward safely with it. I cannot cope between sessions except by overdosing to black everything out and self harming to punish myself, temporarily quiet the voices, temporarily be something other than the utter pain. I’m not allowed any of the things that would keep me safe between sessions.

If I go tomorrow, I will be so angry. I can’t say I’ll keep it under control in the session. I can’t say I’ll stay “stable”. Nothing keeps it in anymore. I can’t mentalise like this and really I don’t want to. These things just are as they are. There’s nothing to be “curious” about or explore my feelings or someone else’s thoughts. Their thoughts have been made totally clear – they don’t believe me, I’m not allowed help, they’re tricking me, they’re cutting me open then leaving me and finding more and more ways to do it. My feelings are exploding and total. Fury. Hurt. Trapped. Over the edge. Liar. Fake. Fraud. Pain. Screaming.

If I go to group I can’t avoid it being clear I have no hope and no trust left. If everyone or anyone else does trust the service and does believe they’ll help them, then maybe that gets them through and helps them and is a lifeline for them. I don’t want to destroy that.If I say what’s happened to me, even in the last couple of days, I could destroy it.

I could go and just try not to talk about anything to do with me and just be there for other people and listen to them and try to mentalise about what other people bring. But I’m so far gone over the edge I don’t think I can trust myself not to explode.

When the group started committed to do it all. I committed to not leaving. I committed it to everyone in the group – not out loud, we didn’t do that, but in my head I did. I promised to God and Mother Mary too. If i leave I break my commitment to everyone, not just the service. I really don’t want to do that.

Yet at the moment I’m just ending up in more and more danger. It seems as if I should just accept this’ll never end, dissociate as much as possible, hope for something sometimes bearable…. but I think I’m too far gone for that. I wish I’d never trusted them.

Somehow

[TRIGGER WARNING FOR SUICIDAL THOUGHTS AND ACTIONS, SELF HARM AND OVERDOSE This post may be disturbing please read with caution if this may be unhelpful for you. ]

Somehow it’s nearly morning. Well, it is morning. I’m numb and “out of it” like it’s not really me, but everywhere at the same time. I thought I came to the end. That was supposed to be it. But I’m still here.

I’m scared to write this because it makes it real. What I did. And what is. And that I’m still here and that it’s morning. No question.

(“The watchman counts on daybreak and Israel on the Lord” I can’t remember what Psalm that is right now. ..)

I’m scared to write because I don’t want anyone to hurt and it was noone’s fault but mine and no one’s doing but mine and my responsibility. I lost it, I snapped and gave in. I didn’t deserve it but they cared for me.

I know I was so nasty to someone who has only cared for me. I needed too much. I still do. I’m so sorry.

But I have to write this. I have to write this in order to go on. I’m scared and I can’t remember chunks of time.

So…

I got to the end on Saturday. I screamed. I smashed things in the kitchen. I cut. I took an overdose. A lot more this time. This time it was the end.

But it wasn’t because I’m still here. And I have to get up soon. I have to get up and get dressed and go out and get something to eat and then go to the hospital to see the psychiatrist and my therapist. I promised I’d do it.

I’m okay. I don’t want to scare people. I’m okay physically. I got help. I’ve been in the hospital Saturday and Sunday. I came home late last night. They monitored me – blood tests and ECG and blood pressure and everything – so I’m fine physically. They were kind. They looked after me. I ate. I saw the duty psychiatrist. They’ve sent a report to the personality disorder team. I already had an appointment set with my therapist this morning and I’m to go early to see the psychiatrist too. So I’m safe. I don’t want people to worry.

I’m going on. Nearly time I can get up. It’s cold this morning. I have to decide what to do about work and what do I tell them. I’m meant to be in this afternoon.

“The watchman counts on daybreak and Israel on the Lord.” Keep saying that and get up and it’s morning.

Ginny xx

What do you hold onto in the darkest times?

I’ve posted before about how, like many people with Borderline Personality Disorder, one of the things I find hardest when I feel really bad is to hold on to any knowledge that it will not always be this way. The overwhelming emotions – especially fear, sadness, loneliness, anger, pain, frustration, self hatred, self disgust, hurt, distress, longing or needing, or the feelings I can’t yet name that come with flashbacks – they eclipse everything else and become all that exists.

I wonder if their power is greater if I fear the emotion I sense. But the totality of the experience, their consuming nature, makes them the more frightening.

Descriptions of this emotional experience in BPD often term the feelings intolerable or unbearable. It is that but it isn’t quite either; it’s not all of it. Intolerable, more than I can stand, yes… but it’s not something I can’t stand because it’s me. In that state there is nothing but the emotion and there is nothing of me but the emotion. I cannot stand it but neither do I exist apart from it.

I hate it so I hate myself. I must get rid of it, purge it, so I must get rid of myself and cut away the bad – so I cut.

I can name some of the emotions afterwards. Maybe the therapy is helping me to do that. But in the experience, I cannot. I cannot recognise anything but hurt and pain and hate and evil (me); I cannot hold in mind anything but the impulses to cut, run, scream, end it, reach back for numb. .. and I am gone. ..and I spin between cut off and unable to feel and any attempt to engage being painful, and the state of total emotion, of only existing as that pain.

I cannot control it. I cannot bridge that gap. Therapy is helping me identify what feelings are. But it doesn’t separate them from me, from time, from permanent reality, from right and wrong. It doesn’t tell me how to feel, rather than be, the emotion. It doesn’t tell me how to bridge the gap between the different people I become – the cut off numb one;, the one that hides everything to cope day to day and do what I’m meant to and fulfil my responsibilities and pretend and hope I could ever be good but knowing all the time that everyone really knows how fake it is and how evil I am deceiving everyone; the frightened needing child; the angry, vengeful and impulsive one. More and more they seem to be separate personalities. I am fragmenting. I am more unstable. I lose more periods of the day – when I’m in one state I cannot “access” the other and I can’t remember things that happened (though I may remember the state). I flick so quickly between states without being able to engage my rational mind and try to employ any grounding techniques or DBT techniques to control my behaviour or my experience.

I guess it’s good that I can start to be curious about the process, from the temporary relative stability of my “coping” state. It must show I do have some ability to learn to mentalisa about what’s going on in my mind. Usually my “coping” state would be trying to suppress what I’m exploring right now. Perhaps eventually I’ll be able to build a more curious and stable personality at least alongside these others.

What do you hold on to when your whole reality, your whole existence, is unbearable sensation and emotion? It sounds utterly stupid. It sounds utterly out of proportion. It sounds self centred and I am forced to admit that though it’s the very last thing I want and one of the things I most hate in myself, in a way it is, though at the same time self has got totally lost in the feeling and emotion coming from everywhere.

What do you hold on to when you can’t access your coping strategies or even your most rooted beliefs and deepest cares? I love my God and know God is mercy and compassion, but in the bad states I can only conceive of a vengeful God or a God casting me out. I love my godchildren, I care about keeping my commitments at work,  but in those states I can conceive only that I do everyone harm and everyone knows I’m bad really and would rather I weren’t around. The centre of my beliefs and values warp according to the state I’m in.

What to I hold on to?

Ginny xxx

Hurting tonight

It hasn’t been a great week.

Hurting with physical pain from gynae problems and joint problems.

Going between guilt for worrying and burdening my family and not being able to do what I should, and feeling cut up that I’m “in the way” to them and need to be compartmentalised so I don’t intrude on their life – the part of it they actually want not just feel obligated to do.

Seeing far too many things. ..scary things. ..that aren’t there… that are hallucinations from memories that grip me and shake me.

Wishing someone would hold me and tell me it would be alright even when the flashbacks come.

Working through water or a fog each day and knowing I’m getting it wrong and doing wrong and so so tired.

I slept about 4 hours tonight if that. Tomorrow is group therapy again. I am so scared to go. I will go because I mace this commitment to everyone in the group, the therapists, and to trying to get better, to God, and I won’t throw away what I’ve been given. But I’m scared. I don’t know where we are, I don’t know how to be, I don’t know who to trust, and I can’t trust what I did trust or where I thought we were before. Everything unraveled last week. I wish I need not speak. I wish I could just sleep and stop it all.

I will try to go forward thankful. I will ask thankfulness for another day, to learn to thank our God for revealing His loving kindness in the tiny little helps of each day and pray to notice and see them not just the mess in my head. I will try to work to make something beautiful – even just draw, colour, sew, write to my family and my closest friends who mean so much to me simply by still somehow being here.

Somehow this moment will pass but good will remain. I’m trying to believe.

What if I don’t trust them?

I’m still struggling to process what I’m feeling after therapy group on Friday. Tomorrow I have my 1:1 appointment and I know we will be talking about it. It is going to be so hard to go and even harder to go back to group when it comes around this Friday.

Just when I’d dared to start to think it’s okay, it isn’t. Just when I’d started to think group might be a safe place, somewhere that you can dare to speak about things that are otherwise forbidden, it isn’t.

Just when I’d started to let my guard down a little and trust, it turns out I’ve hurt everyone and didn’t even know. How did I not know? Usually I can feel it right away and know it’s my fault and this time I didn’t. I so so needed to trust them there and now I can’t. I couldn’t understand what I was feeling then last night the thought hit me – what if actually I’m angry and hurting because I feel I can’t trust them? I did the wrong and I caused the hurt but what if I’m angry because I feel people didn’t say what was really happening?

What if I’m angry because I feel I can trust or speak anymore?

What if I’m angry because I really needed to trust and yet again it all breaks down, just as usual, every other time? I know and felt so so strongly they hate me, they are angry, they don’t want me there, they hate me, they’re angry, and they’re angry for each other too because I’ve done wrong and got it wrong and they think I’m nasty, a fake, no right to be there, they just want me to go away and just put up with me because they had to. What if that made me angry as well as guilty because I can never know where I am and know I must never ever let anyone close but so desperately need people?

Does anyone else ever just wish they could never have to speak again?

The hallucinations are multiplying as my thoughts spiral through all these things.

Ginny xxx