Tag: new year

2018

I haven’t managed any Christmas or New Year posts, at least not as I wanted to. Some wonderful things happened over Christmas so far yet I feel totally blocked when it comes to writing. After intense emotion I feel exhausted and shut down, even if the emotion has been good. Then shut down leads on to dissociation and being unable to be with anyone. That’s BPD. A lifetime of experience of Christmas and New Year as a very unstable, frightening time (abuse, rejection by family and so on, continuing well into adulthood) must add to why I find this a strange time. I need to pray and act to change this for my fiancé as well as me.

I wanted to be able to write about the immense gratitude and astonishment I felt at the wonderful parts of this Christmas and to share all the hope there is for my fiancé and me this coming year. I see that I’m going to have to take that slowly as it’s overwhelming.

So instead, I’m going to share what comes to mind now that I’m thankful for in the year just past, and how I’m resolving to make more space for gratitude in 2018.

  • I started working as an “expert by experience”, sharing my experience of my mental health conditions, my life, therapy, and getting (or not getting) help. I’ve been working with medical students, researchers and clinicians. Doing this has meant battling massive anxiety and some of my symptoms temporarily being triggered stronger in a scary way. But it has been a massive positive in the end. It’s given me the chance for my mental health not to be solely something problematic – for me to be something not solely problematic. If I can help students gain an understanding of mental health, if I can contribute to shaping research materials and methods, then my experience is working to the good.
  • This is a mixed one for me. It’s about 3 weeks short of 1 year since I was discharged from the specialist personality disorder service, because I had come to the end of the treatment course they offer. It’s mixed because of the difficult relationship I’d had with the PD service and because all mental health support abruptly ending like this was really really hard. I was left without the ongoing support that several doctors all agree I still need and with some conditions (such as my PTSD) left untreated and no prospect of getting therapy for them. Despite this, during the past year I have stayed out of hospital. I have needed crisis support on a few occasions and once this involved several days of help from the crisis team at home. However I haven’t been admitted as an inpatient. And I’m still here, somehow getting by, sometimes more than getting by. Though it’s hard to hold in mind, this is a massive change from say, 4 years ago, and I owe massive thanks for this.
  • This little fluff ball joined the household and she’s brought me abounding snuggles, purrs, laughs and love (as well as her fair share of moody or mischievous moments).
  • My greetings card making has very gradually taken off and it has been so great to see that other people enjoy and appreciate my designs.
  • I’ve discovered a relationship I never thought I could know in my fiancé’s care for me and his love that continues constant through all the things I’m ashamed of and hate about myself. Never did I imagine this kind of relationship, this kind of life together, could be.
  • Every week I look forward to the Day Centre where I go to keep elderly people company and lead art and craft activities. There I am “okay”. There I am part of the team and I am deeply thankful for that. We pray together. We are strengthened together. We share a little of how we really are that day and it’s okay. We find hope not the need to hide. We find creativity we often deny ourselves. The voices that crowd my head sometimes leave for a time as I’m engaged working for our elderly people’s happiness.
  • This year 2018, I want to really notice gratitude – preserve time each day to notice what has happened, what I’ve done, what I can give thanks for and to record this. One of the ways I do this will be keeping a handwritten daily and weekly diary, not much, just a few lines or words some days, but enough to maybe stop everything slipping by so fast, to help me to be present here and now. Too often dissociation means scary voids behind me when I try to remember the day or week just passed, whilst my physical and mental exhaustion mean overwhelmed panic at the next day and the future. Neither fosters gratitude or being present for my fiancé – or for God. I’m going to protect time each day to reflect and give thanks.

I’m praying for blessings of hope and for time to notice the good for you as we step into 2018.

Ginny xxx

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Update long overdue!

It is a really hectic, up and down time at the moment and I’m much overdue posting. It has been hard to gather my words. I don’t make a habit of 2am posts – certainly not the best time of day for coherent writing – but I did not get to finish this earlier and it felt important to write before a big change coming up for me in the morning.

Belatedly, wishing you good things this New Year. I think I can just about say this since it’s still January! I’m praying that positive times and opportunities come for you and God’s blessings are shown to you to encourage you each day.

January is always a strange time, cold and empty in a way, after Christmas. Right now, so much seems unsettled, in the world, for my loved ones and in my personal life. I’ve written that before not long ago and of course it has not magically changed with the new year; if anything it seems all the more apparent. I’m trying to give generously of time and resources and friendship, for example to friends in need, and that’s how we encounter Christ in every day. But I’m feeling twisted apart inside because I come up against my limitations, what I cannot give and cannot resolve.  The family in my block, both of the partners seriously ill, whose Benefits have been suspended unresolved for weeks so they have no food, heating or electricity. My friend who has already suffered terribly and now faces more surgical procedures, my friend who has been homeless for almost a year and whose life may be in danger… to the thousands on thousands of people seeking asylum, the fear taking hold giving weight to insular policies that seem to offer protection but perhaps already spiral out of control. (The Mexico border “wall” seems to me to teetering somewhere between bizarre Divergent- trilogy-esque images and more than echoes of the Cold War era eastern block policies.)

I steer away from political issues in this blog but I think this turmoil hits ever closer to home. We hope that in times of hardship we come together and hold onto what matters most but I’m starting to think a certain level of hardship and fear brings only divisions. Then again, in my faith I believe somehow this must not be true because Jesus became Man to suffer and experience everything we suffer and go through. And He is all Love. Love came here, into the darkness and despair. Nothing changes Jesus. The despair and dark and hurt didn’t change Him, didn’t change love. So Love is here, Love suffers and struggles, but isn’t extinguished, so even in the hardest times, it’s love that remains – not division and conflict . I mustn’t lose sight of that.

This post has diverged somewhat from the update I originally planned. Probably to do with the fact that it’s 2am. I’m going to try to get back on track.

Since Christmas, I feel I have not been able to catch up at all. Usually, I have a big clear out, going through cupboards and drawers and so on and decluttering. I haven’t managed this at all. I’m frustrated with myself that I can’t keep on top of the housework at all. My emotions are bubbling over and have been for some time and I feel I have no resilience to cope with straightforward things. Saying that, maybe a lot is happening at the moment. I’m about to be discharged from the personality disorders community service I’ve had therapy in for the past 2 years. I’ve been trying to find support and things I can get in place for after my discharge. This has not been easy and actually it has been quite distressing because I have been promised a lot of treatment I haven’t had and I’m left with major mental health issues unadressed. On the positive side, I have made contact with a peer support worker and Recovery Coach who are going to help me short term and I think this will be really valuable. I have also signed up for some courses at a Recovery College, which I’ll post about (and explain) next week.

My physical health is not going through a great patch just now. The cold always makes the pain worse so that’s part of the reason. I have had to give in to the fact I need a wheelchair sometimes now and I’m looking at getting a mobility scooter. At least this will help me be less isolated and take a little stress away perhaps, because I’ll be more able to take part in things outside my home, like my volunteer work.

Practically at home, I am going rapidly up the wall at the company who should be repairing my boiler. I have had problem upon problem since November and now have no heating or hot water. I feel they have handled the whole thing terribly (7 canceled appointments for a start, having to phone 6 times to arrange a very simple thing, and so on, then them accusing me falsely of missing appointments). Ggrrr!! I know this is just part of life but in the state I’m in at the moment, I can’t cope with this, and feel very frustrated with myself for that. My emotions explode out of all control. Then I get angry with myself because so many people are going through so much worse.

A close friend has serious housing issues as well as a huge number of health problems. I’m trying to be there and do what I can. Cook hot food and support him with form filling and trying to get him a support worker who could help. It is a little way I can try to help and use the knowledge I’ve gathered from my own housing issues in the past.

I’m going to stop here. Later this morning is my last group therapy session and this will be a really really hard lot of goodbyes. I’ve been writing thank-yous and goodbyes, some of the hardest cards I’ve ever had to write. I’m sure I’ll write more about this last session and ending therapy, in the coming days. At the moment I’m struggling to find the words. I’ve cried so much today.

Ginny xxx

 

 

Furthest away from those closest

[Begun writing yesterday 30th December]

I’m really sad, angry, lonely and hurting. I feel excluded, blamed, not believed, not wanted, a disappointment, right when I am trying the hardest, giving the most I can, in the most pain and most need to find some understanding; not necessarily help but simply acknowledgement and belief of what I’m experience and some love nevertheless from those closest to me whom I might hope to trust.

I’m on the journey home now after staying 3 days with my dad and step mum and I am ashamed but I could not have coped with one day more. Again and again in my flashbacks I was back to being the child with my mother and my father and the constant terror and trepidation and dread. I live the same situations over and over. I’m terrified of the next time she’ll think I’ve done, said or thought something wrong and get angry. I am exhausted from any time with my step mother and her utter insistence on her right and my wrong. Even simply talking with her and Dad, it’s as if we’re back where whatever happened I was the problem, I was the one behaving oddly, I was the one causing damage – when actually my mother was the abusive one, she could get away with anything, when I was crying for help nobody heard, nobody helped me and my father appeared to agree with her entirely. Similarly now, he can’t believe my step mother and everything she does is anything but fantastic and wonderful. I know I’ve said before, in a family situation he is utterly loyal but to the exclusion of the point of view of anyone but her, just as he was with my mother. I think that’s at least in part how I went unheard for so long when I was clearly massively distressed and when I needed his help, and when I told him what she’d done.

It was a bad enough time through all this but it has also become very clear how little my step mother believes or understands about my physical health and disabilities, how much she blames me, holds me responsible as though being ill is a choice, how annoyed and disappointed she is I don’t live up to her requirements. I’ve known for a long time how she doesn’t understand but it came home this week. It isn’t only me that it’s directed at. She shows the same attitude to my step sister over her mental health and to one of her friends who has a lot of physical health problems. It is beyond me how anyone can show as little belief or understanding of what someone is going through, as little compassion and as much blame, but then I have been ill or physically disabled most of my life so admittedly that gives me a different starting point.

She is not open to hearing what day to day life is actually like for me or even seeing it when it’s right in front of her . I don’t make a big issue about my health. I try to make sure it affects anyone else as little as possible. But when she is lecturing me about why don’t I do this or that, things are only a problem because I imagine they are, and so on and I have to try to explain eventually why I may not be able to do something, she refuses to hear and insists on her solution and gets angry if I can’t do it. When I’m physically unable to do something when I’m right there with her, for her it’s something I’m doing deliberately, it’s a real problem for other people, I “just have to do it”, I am not making enough effort… it’s like when my mother accused me of pretending not to be able to do things if I didn’t succeed academically as she required, and the resultant rejection and punishment of me is similar too.

I wrote a lot about what my step mother said to me and did which I’ve deleted because listing a load of hurts and speaking badly of someone does no good. When I was leaving, she started up again about “New Year, new you”, how everyone needs it needs to be a healthy year, we don’t want any more of this, I’ve got to be completely different  and I’ve “simply got to” make sure of that, and it’s all about positive thinking, it simply has to be mind over matter, as if it’s a choice not a number of lifelong health conditions. She loves telling me what I’ve simply got to do, always things which I literally physically or mentally cannot, so she exerts a great amount of pressure and certainty that I’m a disappointment when I can’t meet her simply-got-tos that she heaps on me even when they’re medically not possible.

In the face of all this, my father blanks me, ignores what I’m experiencing, denies what has happened or ignores what I say if I express as much as the fact that some of what she says is hurtful, to the point of refusing to answer and acting as though he has not heard or changing the subject. He literally will not hear a single thing against her, or even not 100% agreeing with her. It’s just like how he withdrew and ceased responding and cut off and rejected me and to say the least did nothing whilst my mother continued all kinds of emotional physical and sexual abuse. Then he is able to say he doesn’t know what’s happening.

***

My step mother’s growing obsession with weight and Slimming World is hard for me too. The fridge looks like a diet advert, even though it’s Christmas, brimming with vegetables and low fat yoghurt and very little else. Food is such an issue and has to be done her way. She will not stop telling me how I’ve “simply got to get healthy… simply got to prepare proper meals”. I don’t want anything to do with her diet. She has no concept of eating disorders and how hard a combination of the voices, my physical disabilities making cooking and the resulting cleaning ever so painful, and my eating disorder make it to cook. Yet she can’t see past her own obsession with vegetables, fat free, going to the gym…

***

I’m at the point of ceasing to expect anything but rejection, judgment and accusations from my step mother and from my dad, withdrawal from me and utter support of her views. At best. The glimmers of understanding I thought I had from my dad just seem like a trick now that opened me to trusting, making the inevitable return to rejection and accusations all the more painful. I will not go to stay with them again any time soon.

It would be easier for me to cease all contact with them. My step mother does not often behave as if she likes me. I often think they might well prefer me to have only infrequent contact. After all, I’m seen mainly as a problem. Morally, I don’t feel I can cease contact. I have a duty to them. I want to forgive. I can’t expect total understanding. If I ask forgiveness from God when I’ve judged other people I need to forgive them. I try not to act angrily but the hurt is much harder to control. If I did not have a dependence or need for their understanding, it would not matter to me so much. Though my father’s withdrawal and denial of my experience hurts as much as what my step mother does.

It hurts so much in my head right now.

Ginny xxx

Christmas Day – “O hush the noise ye men of strife and hear the angels sing!”

Christmas Day – “O hush the noise ye men of strife and hear the angels sing!”

Christmas morning! We’ve arrived. Christ Our Lord gives Himself to us in tender love and mercy. Come, let us adore Him, the Christ Child in the manger.

What a year it has been, personally for me, for my loved ones, for this whole world. Falling over the same stumbling blocks and falling into the same sins, or losing sight of hope in the face of fear, flashbacks, overwhelming emotions that can block out everything I want to believe in, it does not take much to make me despair and think God’s mercy has run out for me and He will cast me aside and say I do not know Him. Looking at what’s happening, here, in my family, in the UK, in stricken countries like Syria, never have I felt so helpless here and now faced with such need, fear, suffering, the very present threats of acts of terrorism, the devastation and loss wracking so many people. It is so hard to know how to respond and easy to feel very afraid.

At the vigil Mass last night, we sang “It came upon a midnight clear” after Communion. This is not one of the carols I know best but never did this verse seem so apt:

Yet with the woes of sin and strife, this world has suffered long;

Beneath the angel-strain have rolled two thousand years of wrong,

And man at war with man hears not the love song which they bring –

O hush the noise ye men of strife and hear the angels sing!”

So often I, we, cannot hear the song that Our God sings to us His beloved. Shame, fear, despair, self-disgust, pride, all can make this “still small voice” harder to hear. I was praying, feeling despair and the voices were saying to me, how could God look at me now, how could He look at my foul disgusting weak lazy heart. The Lord answered me in prayer, “My gaze is longing Love.” And He called me to draw near in prayer to the manger at Bethlehem, with His Holy Mother and St Joseph’s protection.

The nativity is the sweetest song of love for us. God who brought this whole world into being, who shaped the seas and land and skies, who brought each of us into being in love, is come in humility, even vulnerability, as a little Baby, reaching out to us, fully sharing our human lives. He was born into darkness, poverty, homelessness, a world confused and at war. The Priest told us in his homily last night, when we look at the Christ Child, we see the certain knowledge that God never gives up on us. He delights in each of us. He delights in us so much that He chose to be born as one of us. And I think He chose to be born, needing us, needing our simple answer “yes” to receiving Him, yes to resting in His loving gaze, to holding Him in our minds and hearts, to carrying His hope into the world, to encountering Him anew each day but most especially this Christmas morning. So we learn to “give back the song which now the angels sing” in the words of the carol.

You are in my prayers today. I feel deeply thankful to you for reading, commenting, your thoughts, prayers and support and the experiences you share on this journey. I know that for many of us Christmas and New Year is not an easy time and it gives rise to deep, erratic emotions and maybe painful memories. I struggle at this time. Through all the joy of the gift of God this day, I feel overwhelmed and unstable, emotions heightened, the pain of losses and traumatic effects associated with this time and deepened, and the needs, expectations and rush of the holiday period are not easy to face. I’m very blessed not to be alone, to have two special friends to celebrate with quietly today, and to have these couple of friends and the blogging community here with whom I can share honestly. Thank you.

I’m wishing you plenty of moments of happiness; peace deep in your heart through whatever path you are on; that you can experience friendship, care and support; that in the hardest times there are little things to give you hope bit by bit; most of all, that you know the love of God who delights in you.

“…And ye, beneath life’s crushing load
Whose forms are bending low,
Who toil along the climbing way
With painful steps and slow,
Look now! for glad and golden hours
come swiftly on the wing.
O rest beside the weary road,
And hear the angels sing!
For lo! The days are hastening on,
By prophet bards foretold,
When with the ever-circling years
Comes round the age of gold
When peace shall over all the earth
Its ancient splendors fling,
And the whole world give back the song
The blessed angels sing.”

[From “It came upon a midnight clear” by Edmund Sears (music by Richard Storrs Willis) – see here for full lyrics ]

Wishing you a blessed Christmas.

Ginny xxx

[Image from “The Nativity Story”]

 

 

Apologies for my silence… and a Christmas prayer

Apologies for my silence… and a Christmas prayer

I am sorry for being away for many days and for being behind on replying to comments. The last two weeks have been very mixed. I’ve been blessed to have the friendship of a couple of very supportive friends local to me, who were so kind to me over the Christmas days. Also, I’ve had a struggle over this time as always, and a very upsetting event through which I felt I absolutely couldn’t go on.  Again I was blessed with a friend who could see hope for me.

I will write more at the weekend and catch up on everything once this busy week at work is concluded.

You are all in my thoughts. I’m praying particularly for anyone who finds this time of Christmas and New Year taxing and hard or painful, as I know so many of us do. All we cannot find or do or be can be all the more hollow and isolating round this time. Loss is more raw. I’m praying for tiny little lights and encouragements and the knowledge that you are good, can do good, to help you through one hour at a time.

In my belief, at Christmas Our Lord Jesus loves us so much that He came as a little baby to ask for a place in our hearts and He came right into our darkness and poverty. So we are with Him right now in the midst of all the hardships. He asks no great deeds of us, only love. We need not overcome all our weaknesses to be with Him because precisely in weakness He came to us. We only need to be still, with Him.