Tag: recovery

Changes ahead

Changes ahead

I’m going to make some big changes to this blog over the next week.

It has been many weeks since I’ve posted regularly. My husband has been coming through major surgery for cancer. Another family member has been through severe trauma. We have been struggling through a heavy load of financial issues since last autumn. My PTSD symptoms are worse. I’m not coping with day to day basics as I want and expect myself to. I could go on.

However a big reason I want to make changes in this blog is that my posts have been too sporadic and too distressed and distressing. I don’t want this site to be just me venting and screaming about how hurt I am. That doesn’t help anyone.

Yes, I want to be totally honest in what I post. Totally real. I don’t want to turn the blog into a falsely cheerful, superficially positive story. After all I’m talking about very present and painful trauma, illnesses and struggles. I am not going to pretend that I have all the answers or that I’m “over it” and nothing can touch me.

Yet I am more than the damage done to me and the hurt of every day. I want to try to find that. I want to write about that. I want to be thankful for all of me and all of every day. Also, I want to incorporate more focus on what helps me cope and even heal.

I want to have a regular posting schedule and more defined sections on this site so I can share what’s happening in my life week to week, but also share information about what helps me and may help readers, answer readers’ questions, post in response to reflection about what’s happened to me in the past, how I tried to cope and why. I want this blog to be helpful to readers, partly through reflecting what living with PTSD and borderline personality disorder is like, partly through sharing resources and information.

Big changes are coming up. Please watch this space! Thank you!

Ginny xxx

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I want to make changes in this blog

I want to make changes in this blog

I want to make some changes to how I write this blog.

A lot of everyday life feels @&)!%*€ awful at the moment. My husband has cancer and is having major stomach surgery next month. He has 3 other operations due and that’s assuming there aren’t complications of the March surgery. It has been horrendous since November trying to sort out our state Benefits and just when it seemed it was sorted, I was told I had to have a reassessment of my disabilities for one of my Benefits and had to complete a 25 page form and send around another 20 pages of evidence in with it. I have a face to face assessment 9 days before my husband’s surgery. This brings with it the worry my Benefits will be stopped or reduced if they decide against me. My disabilities are all worse than when I was last assessed but you hear nothing but horror stories about Benefits assessments. Our money could get cut off whilst my husband is in ICU after the operation. We have other financial worries as well. We have had a whole series of let downs from people that should be helping us, including doctors and nurses and support workers. We’ve been brushed aside and labelled as worriers or nutcases because we have mental health problems – when in actuality my husband has multiple tumours in his body. When I have severely painful disc damage and degeneration in my spine. We have complex and deteriorating family relationships to work through and little support.

I could go on.

I want to scream. I don’t know if I’m crumbling or exploding but I feel I’m on the brink of going to pieces. I don’t know when I last slept through the night. The nasty angry dangerous version of me is getting out more and more as dissociation takes over. Right when I need to help my husband.

I need to make this blog different. I have become more and more sporadic in posting. When I’ve posted at all it has been sad and angry, as the result of an overflow of emotion or a need for an outlet of some kind. Having that “let out” is important but I don’t want it to be all this blog is. When I started writing I wanted to be able to express myself and also to be honest about what living through mental and physical health conditions is like. A lot of that is difficult, but there are good times and strengths too, and I want to reflect that. I want to reflect learning and gratitude too. I want to try to explore different aspects of my conditions and what helps. I want to post regularly, with more structure.

I need to make plans for how to change.

Ginny xxx

God whispers and the world is loud

I stumbled across this quotation today.

It’s apt for me. I need to rest and listen for God’s “still small voice of calm”. Amid anxiety, distress, confusion and an awful lot of dishonesty around me right now, His voice guides and assures and gives hope for now and the future; His voice is always there if I allow myself to hear Him. I know He is with me working out His plans. Where I am right now, He needs me to be and needs me to serve Him.

I don’t know who drew the beautiful illumination in the quotation or who wrote it, but I found it thanks to the Facebook page Contemplative Monk.

Ginny xxx

On the move

Its a few weeks until the wedding but I am getting ready to move house, packing boxes to go over to our new flat. It feels as though I’ve been trying to get to this point for months and not making progress, through a combination of my exhaustion, my physical disabilities and mentally being unable to make decisions or forward plan. At last we are making progress! Thanks be to God!

The approaching deadline of our wedding is certainly a motivating factor. So is the fact that we are putting our home together in the new place (my fiancée has moved there already). We are blessed that our financial situation is better than it was and this means for the first time – first time ever for me and first time for years for my fiancé – we can actually choose some furniture we like and pieces which all match or coordinate, to make a calm and restful environment for us both. It’s somewhere we both want to be and feel thankful to be. For the first time it’s not a move that’s fleeing something, escaping somewhere, or because of a loss (death, broken relationship, having no money to live, for example). We are moving to start our married life together and that’s wonderful. That helps me keep going.

It has been very hard for me to tolerate the mess and chaos of packing. My threshold for feeling overwhelmed and having a meltdown is lower than usual. I’m trying to recognise that and actively spend mental time focusing on the good we have achieved so far and the good to come. Actively thinking about the good is much more effective for me than saying “just don’t think about it [the things panicking me]” “just push it away” “just don’t worry about that” “you just have to keep it simple and be positive”. (What exactly does that last one mean, anyway?). I can’t “just” stop a thought or feeling by choice, and the fact I can’t do that when other people require it is likely to make me feel even worse. But I can dedicate time to thinking of a positive future, however imaginary it may seem, or to counting tasks I’m thankful we have achieved.

Yesterday a friend of mine in the parish took lots of my surplus kitchen things and clothes to give to a poor family and some refugees arrived in the parish. They will be able to use some of my furniture as well, if we can find a way to transport it.

Tomorrow a lovely charity are coming to take away all kinds of other things I can donate or that need to be disposed of, and to help me pack because I can’t physically do it myself. This is amazing.

My cat doesn’t think it’s so amazing and is walking around with a very suspicious look on her face. She doesn’t like a lot of bustle or things being moved round the room. She’s alternately ever so affectionate, then moody and trying to scratch. I think she has lived in so many different homes before I adopted her that she thinks she will be left again – that the signs of moving mean I’m going to go away and abandon her. Poor puddy cat has attachment problems just like me! 🤣

We shall have to see if her mood improves once she realises there will be lots of cardboard boxes to hide in…

Ginny xxx

Picture by memecenter.com

If he doesn’t realise he’s being abused, what do I do?

I’ve gone too long not saying anything. I need to talk to my dad about what my step mother is doing to him and to me.

What happened to my other family member, who was being abused for months with no-one’s knowledge, has made it clearer to me that I need to speak out. I know what can go under the radar; how for those closely involved in the abuser’s world, it can be impossible to see what is happening. And look what went under the radar when I was abused as a child. I’m trying to separate myself from my anger about all the times I “should” have been helped. Right now it just shows me how important it is to not let it go by when you see abuse happening. Another event that has made it clearer to me that I need to speak out is that third parties have commented on my step mum’s behaviour and how my dad is and how another vulnerable member of the family is treated – this was not based on what I told them but on what they themselves observed. It isn’t just me being crazy, or misinterpreting because I’m too sensitive because of my early life experiences, or imagining it, or because I subconsciously resent my step mother so somehow want bad towards her. It’s really happening. Then on top of this, my social worker and a psychologist I have been seeing at the pain clinic have both said to me that for my wellbeing the only course of action may be to restrict contact with my step mother. This is on the basis of the limited number of incidents I’ve described to them from the past 7 years or longer.

It’s really happening. It’s sustained (worsened actually) over time. My dad has no idea or if he does see it wants or needs to ignore it (because he thinks it’s normal? Because he thinks he deserves it? Because he doesn’t know what to do?). My step mum has been able to convince other members of the family that she is perfect, blameless, that she is the one being mistreated, that I am the one mistreating her or causing the problems, that I am the one doing wrong to my dad, that another person in the family is again a cause of problems and to be ostracised (and she has orchestrated this ostracisation), when actually they are vulnerable and desperately in need of help.

As well as being angry with my step mum, I am angry with my dad. This is totally wrong. Misplaced. I feel furious anger at my step mother’s abuse going on unseen and unchecked, even when it is done in plain sight. Why do I have any anger towards my dad? My anger should be only towards her, and the immense control she exerts and deception she weaves, which allows her behaviour to be unacknowledged, unnoticed or excused. That’s all part of her abusing. Does abusers’ behaviour somehow get you angry with the wrong people too? Or is it because all the feelings are brought up from when I was a child needing my dad to help me, trying to tell him what she was doing? Because I can’t really understand why he couldn’t see what my mother was doing to me and what she was involving him in back then? He was deceived by her but he also did wrong, but that’s another story.

However, I am left with the fact that again he’s in a relationship where he and others are being abused, and either he can’t see that it’s happening or he can’t / won’t take action. I don’t want that to repeat for him, for anyone else I care about or for me. It went on 30 years in his relationship with my mother. I don’t want him to go through more years of abuse, never taking action or only taking action when much more has been lost. He is fit but not so young anymore and if he were only to realise what’s happening when he’s elderly, it would seem all the sadder.

I can’t force my dad to take action. I can’t pull him free from the situation. What I can do now, which I could not do as a child, is try to openly tell him what I’ve observed and what I’m worried about. I can also tell him how she behaves to me. It’s likely he won’t believe me or will refuse to acknowledge it. This is what has happened when I’ve told him previously what my step mum has been doing and it’s what happened when I told him what my mother was doing when I was a child. But now I’m not a child. My safety and my world do not depend on him believing and saving me. Sadly, his safety does depend on him acknowledging what is happening to him.

How do I help him do this? How do I raise what is happening without him being so hurt and angry that I’m saying it that there is no chance he will be able to reflect on how she’s treating him and how he’s feeling? How do I do it without him stopping talking to me at all? Then there would be no chance I can help him. If he just utterly blanks it all and changes the subject, or leaves (both have happened before), what then?

Whilst he is not isolated as we were when I was growing up, in a remote village in a shut up house, nobody allowed in, no relationships allowed outside the home, he is isolated in a different way. Apart from his work, the world he’s in is still hers. Her part of the world, her house then the house she chose, her choice of leisure activities, her friends. Almost everyone he has contact with outside his work is her world. Potentially controlled by her. I can think of nothing he does separate from her, apart from his work. I can’t think of any friend he has contact with who is not first hers. No way he spends any leisure time away from her, except for the rare occasions she goes away on holiday without him for a couple of days, or the rarer occasions he comes to see me without her. It seems there would be nothing and no-one to help him move away from her control.

This is worse than I thought.

Xxx

Greek deliciousness and changing tastes

Continuing to share photos of our experiences in Greece, I think some of the foodstuffs are worth their own post!

The vegetables alone deserve a mention and the Greek treatment of them is totally different from the UK’s. Above is a picture of part of my lunchtime snack at the shopping mall. It’s a roast aubergine with tomato, courgette, herbs, olive oil and a little Greek cheese. (Similar and even tastier than this was vegetables “imam” style, involving aubergines slowly baked with a tomato sauce, which we had at a little restaurant by the Cathedral.) Greek meals incorporate vegetables as an interesting, focal part of the dish or course. They are bursting with flavour already from the climate but as well as this they are prepared with love, whereas in the UK we often drop them on the plate to tick the “5 a day” box and eat them as a chore to be got through to deserve the enjoyment of the meat or sweet. I think we miss something there.

On a similar line, that’s a Greek salad.

Fish and seafood is also important and I tried quite a bit. Sardines are totally different and definitely not tinned there. But much as I wanted to, as they look great and my fiancé enjoys them, I could not get my tastebuds round calamares (squid):

I think I’ll stick to photographing them 😅!

Greek breakfast usually involves hard cheeses and cold meats, and even stuffed vine leaves on occasion, as well as eggs, bacon, fruit, bread, cereals, yoghurt, nuts and so on being available at the hotel buffet.

Not forgetting sweets and desserts:

These macaroons and truffles were just a couple of the amazing selection at a sweet shop near our hotel. The sweet shops we saw also sold a huge variety of nuts – often a better variety than I’ve come across in many health food shops – as well as honey, preserves, halva and candied / dried fruits.

Finally, there are our delicious aperitifs at a rooftop bar looking out over Athens (incredible view to feature in my next post!).

Before we went, I was not sure how I would find following the diet I need to at present because of my EDS and gastric complications (no wheat, minimal gluten, minimal grains, no milk or yoghurt or soft cheese). I found it much easier than I had expected and that there were loads of available choices. I couldn’t try any of the pasta or pizza which was a shame but there was so much else to choose from. There are fewer gluten-free substitute foods on the menu, for example, I got the impression that restaurants don’t typically offer gluten free bread or pasta. However with so much else free from gluten to choose from, they aren’t missed (and they don’t feature much in my regular diet anyway). Admittedly, for someone who is celiac and has to be stricter than me, or who is completely dairy intolerant or vegan, it would be harder when dining out.

Eating felt much more enjoyable than it usually does. Everything just tasted riper and better. How much of that was objectively true and how much my “grass is greener” perception because of being on holiday, I’m not sure! Meals felt more filling more quickly. Or was it the heat?! I didn’t feel the intensity of hunger and cravings that I hate – maybe I shouldn’t but I do – and I didn’t feel out of control. I didn’t feel such a desire for sugar and have to deliberately choose to substitute it with protein, as I’ve been trying to. I just wanted other things. Back home, my regular food tastes rather lacking. On the positive side, this inspires me to learn to cook some Greek dishes once my house move is complete and we are married in the autumn.

Ginny xxx

In Athens

In Athens

I thought I’d share with you some of the beautiful things we’ve seen and experienced in Athens so far.

There are countless interesting churches. In the rear of this picture is the main Greek Orthodox metropolitan cathedral, The Cathedral of the Annunciation, recently refurbished, whilst in the foreground is a centuries-old church known as Little Metropolitan, really St Eleftherios Church (which we haven’t managed to go into yet as it is often shut, unusually for this area). On our last trip here my fiancé and I prayed outside under the moonlight, giving thanks for each other and asking God’s guidance during our engagement.

This past Sunday we were able to go to Mass at the Catholic Cathedral of St Dionysus where we found this very peaceful portrayal of St Joseph and the Christ Child.

There are several people we need to buy gifts for and also we are going to bring some non-perishable Greek foods home to form part of the meal after our wedding. So we went through the Monastiriki which is a set of narrow, winding streets packed with little open-fronted shops selling jewellery, leather bags and sandals, T-shirts, traditional dresses and embroidered shirts, icons, crosses, ornately covered Bibles, food (olives, baklava, Turkish delight, sweets, herbs, stuffed vine leaves, olive oil), drinks (lots and lots of Ouzo and Metaxa brandy miniatures), replicas of Ancient Greek artefacts and statues, toys, and countless souvenirs (some tackier than others – apparently you can fit a picture of the Parthenon onto everything from a teacup to a wooden replica of a certain part of the male anatomy!!).

It’s worth looking up, as well as at the shop fronts, because there are often pretty balconies above you and twisting grapevines where doves sometimes sit.

With new sensory experiences around all day long, I have needed to balance busy hours with down time, and we are so fortunate to have a pool at the hotel to cool down or rest beside.

My fiancé has been utterly impressively amazing at getting me and my wheelchair around – not at all easy when the streets are cobbled and up / downhill. I’ve been really concerned he will wear himself out caring for me. I walk where I possibly can but it is not much at all. My fiancé’s love is a deep blessing I never could have imagined existing. I want to help him rest and care for his own needs too.

I will post another Greece update with more photos soon.

Ginny xxx

This time next week

This time next week

This time next week we will be in Greece, God willing. My fiancé and I are going away for a few days. It will be the second time I have been abroad before which I hadn’t been for about 14 years, so travelling is still new for me. My fiancé’s family on one side were Greek so it’s important to him. I’m still extremely nervous about the journey but I’m using what it means to him and the good it will do for him to motivate me to continue past the anxiety. I know what beautiful places we saw last time and we have plans of what to do this time.

We are both much in need of rest and it seems impossible to get it at home, where the next medical appointment, the next task, the next step preparing to move house, the next unforeseen problem, always cuts into whatever downtime we plan. It’s been impossible to have quiet to listen to God, or calm and free time together or alone.

“We must never let the noise of the world overpower and overwhelm that Still Small Voice.” – Elder L Tom Perry

Maybe going away will allow us to find some stillness and re-establish a routine starting with prayer. We are longing for freedom from the spiral of pushing through the latest crisis then collapsing exhausted. Having a day out locally doesn’t seem to afford us that and brings more stresses. This temporary escape will help.

In terms of travel anxiety I think I’m feeling pretty much as I did before last year’s trip to Greece. Maybe I should expect to be feeling much more confident now but it’s still a new thing and it might take lots more travelling before my feelings change. Or maybe it’s a feeling I need to accept experiencing and it might vary according to how otherwise strained or ill I am. When I’m less well with my physical disabilities, for example, I know my anxiety about leaving the house for even familiar journeys can be huge. What has changed since the last trip to Greece is that alongside the anxiety, I also have a lot more happy emotions, like excitement and curiosity about what we will see and where we will stay. This motivates me to want to go, rather than it simply being a question of trying to push aside frightened feelings.

I’m full of thanks to God for bringing me on this path and for the amazing understanding my fiancé shows me. I never wanted to go anywhere before but I do with him.

Ginny xxx

Image from patternpictures.com with thanks

Undermined

I’ve just had a family member to stay who I find it very stressful to be around. She rapidly and repeatedly undermines and dismisses things I’m experiencing and what I achieve. She makes it clear she thinks I’m faking my physical health conditions, that my mental health conditions are my own choice, that I’m lazy, a let down and a failure. She starts gradually drip by drip until nearly every comment makes clear what a waste of space I am, her hatred of me and any sense I have of myself apart from her statements and blame of me is gone.

Right now I wish I’d cut off all contact with her as I almost did 5 years ago then 4 years ago when her behaviour to me, along with the circumstances I was living in, repeatedly put me in situations too closely mirroring those I was in as a child trapped with my mother’s emotional abuse.

But – and I almost didn’t write this – she’s my step mother and my father thinks she’s wonderful, and what do I do if I’m to allow him happiness… and keep some relationship with him… which actually, I think she would rather I did not have. It’s something else she’s gradually tapping away at. Rather as my mother did.

What obligations do I have to him? To her?

I’m seeing far too many circumstances repeating here. It’s very hard to try to go forward building up my recovery with this going on. But this kind of thing always will go on, and I need to make my own choices and change my own behaviour so I don’t act in the same way I did as an abused child.

Xxx

Clearing out my flat and trying not to go out of my mind

I didn’t know it had been so long since my last post. Life is chaotic. Either I’ve been too low to write, dealing with flashbacks and triggers or scrambling madly to keep on top of more and more pressing demands.

Perhaps I’ve actually achieved quite a lot, with the unending support of my fiancé. We had to put in a “mandatory reconsideration request” with the DWP for his Personal Independence Payment (PIP), including a lot of extra information and details of everything they had got wrong in their report about him. This meant a huge amount of research and writing. In itself it was a daunting task. There were others we tackled this past fortnight too. Perhaps I should feel pleased we did it. Instead I just feel exhaustion, anxiety and upset (at the lies in the DWP’s report and the ramifications for us of his PIP being cut). If I could feel some sense of achievement I’d feel more thankful and encouraged; I’d see how God is leading us step by step. When despite hard work there is still a maze of uncertainty and upset and no conclusion to the situation – in this instance, we have to wait indefinitely to hear back from the DWP as there is no timeframe within which they have to respond – I find I can’t see what we have achieved. Even when others can and are optimistic.

This month several notably positive moments got lost in the anxiety and depression and desperate hamster-wheeling to meet deadlines. For instance I had a couple of great psychology sessions at the hospital. I need to take the time to build up from that.

Meanwhile as a way to try not to lose it completely I’ve been clearing through my flat – again – putting everything I can for sale this time. I haven’t sold as much as fast as I’d hoped but it’s better than nothing. At least it feels like I’m adding a little more to our savings for our future. Listing items for sale online takes more time than I’d expected, accounting for photographing, pricing, listing, checking postage and keeping on top of enquiries.

I signed up to eBay which I haven’t used for some years. It’s been helpful and I’ve sold a couple of things, as well as buying a couple of cheap smaller size clothes I needed as I’ve lost weight. However straight away I am faced by constant temptation to buy things I don’t need, or binge spend when I’m low. I’m worried what I might do if I shop on there when I’m “gone” (when I’m dissociating) and I spend impulsively, taking me back to the state I was in when I shopped and shopped and accumulated bags of things I didn’t recognise or recall buying. It would be worse to fall into this now when it’s not just me but my fiancé’s life that would be affected. I need to put some safety measures in place.

Ginny xxx