Tag: therapy

Unenchanted April

I have wanted to post but not been able to find what to write. I’m sorry it has been nearly a month. Even this post I started nearly a week ago. I don’t know quite what’s making it so hard to express how I really am.

My friend’s health continued to deteriorate. I was fighting desperately to get him help as the danger he was in increased. Everyone in a position to keep him safe seemed oblivious to tune dangers and I could see how close he was to the edge but with no professional’s help I could not do anything more than what I can as a friend and that is not enough. It’s terrifying to be the only one knowing and believing the risk and I know that sounds like I am very arrogant thinking I know better than the doctors, but time and time again now I’ve known what’s happening or going to happen, the doctors have done nothing, refused even to listen to my concerns, and the thing I’ve known will happen, happens. The toll is greater each time. He has liver damage, blood clots, he’s starving himself, he is barely even drinking anything, there’s much more I wish I could write but it’s too personal to him for me to feel I can share here.

I don’t know how to carry this knowing.

I cannot save him alone. What someone else can give you, or trying to carry on for someone else, will not ultimately be enough to keep you safe or even alive. (I know this from my own darkest times, when I’ve been irretrievably low, hurting myself and planning to end my life, and someone close to me – who didn’t know the half of it – screamed at me, look what everyone is doing for you – why isn’t this enough for you? The answer is a post for another time but I know if he continues it must not be for me, not just for me in any case, so I alone cannot save him.

I can pray. I can try to give comfort. I can try to give compassion. I can try to show I love him and that he’s a good person not as he sees a problem, a burden, someone who frightens people, is bad, is not wanted, is no good. I can try to help him find some ways to build a safe, stable home and life. We can find short times of hope, happiness and laughter together. He has an immense capacity to love others, care for them and about them, to rejoice when they are happy, to fight to help them when they are hurting and share their pain. But none of that can he do towards himself.

He may die. He may end his life. I don’t know how to hold this knowledge and all the feelings that come with it.

****

I have been in crisis myself in the last few weeks and was in hospital for a couple of days. Then I had help from the crisis team at home for a week. When crises come I still flip out and instinctive reactions and thoughts take over along with the hallucinations just as much as they ever did before I had therapy. My “little child” gets out and she really isn’t very nice sometimes. It’s scary. I feel like a failure.

***

I’m realising that my mobility has got a lot worse in the last year. I’m particularly weak physically at the moment. I was diagnosed with POTS a little while ago (a heart, blood pressure and autonomic nervous system disorder). I’ve a lot to learn on how to manage the symptoms. Being very faint, muscle spasms, digestive problems and poor circulation have been hard to deal with this month. I’m now very fortunate to be in touch with a pain clinic at the hospital and there are some good possibilities from what they can offer, so I must be hopeful.

I really will try to post more regularly again and share happier news next time.

God bless you.

Ginny xxx

 

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The wrong voices calling

The voices are very bad at the moment. My emotions are soaring and plummeting at the moment since my last group therapy and discharge on Friday. So it is not surprising the voices are worse. They often are when I’m emotional and stressed.

It’s as if now this stage of therapy is completed and I’m trying to hang on to the good and the real, the voices are getting louder (stronger?) trying to pull me back to the blackest darkness and terror where “reality” was my abuser’s words and threats. All morning I’ve heard her calling out to me. Sometimes just my name. Sometimes the things she’d say – mocking, detesting, making me an animal, less than human, threatening, confirming my evil and the terrible things that would happen (unless I gave in and gave her total control). I hear her. And it is terrifyingly real. It is totally outside, not an echo in my head. I turn towards the voice and dread grips me. It stays totally real to me even as I try to repeat my safety statement.

I am Ginny. I am 32 years old. Today is January 30th 2017. She is far away. I am safe now. I trust in God. …He created me for good not evil.

These aren’t the only voices I have but they are some of the most frightening and separate me most from reality. I don’t know how or if there is any way to stop or change the voices. If there is I haven’t found it in the therapy I’ve had so far. If I can’t change them can I lessen their power?

I try to remember,although the world created by my abuser was my reality – the only reality for 11 years and the most of it for another 14 or so – it is not the truth. The voice is not trying to do anything, or pulling me anywhere. It is a hallucination. It is a memory. It is not a person (now). A hallucination does not have a will or an aim. A hallucination is not physical so cannot pull or drag me. So why does it have power to cause me terror, to return me into the frightened child, to make it impossible to believe in my freedom or any goodness in me?

Several other people I’ve met who have personality disorders have shared having experiences of voices. In my 18 month MBT therapy, we talked about hearing voices in the group sessions. Sometimes for example, I’d share that I was struggling to stay present in the room because the voices were loud and scary and I was constantly being pulled away from reality. But in therapy we didn’t get to explore the experience of voices or how to cope with them, how they may interact with what you’re feeling and what is happening in reality, how they affect interactions… in therapy the focus was on using grounding techniques to move away from them and be present in the group and able to focus on others. Sometimes we talked a little about how the voices may affect our thoughts about ourselves and about others, for instance when we’re interacting with someone, leading to assumptions (they think I’m evil, the know I’m bad, that’s what the voices are saying) rather than curiosity about the other person’s thoughts.

However we didn’t talk about how to cope with them. We didn’t talk about their emotional effect on us, the way they pull us with them, the control they have even though it makes no sense, how they bring traumas right back, how what they tell us and make us feel is more gripping than our current experiences, if there is any way we can respond to lessen their power…

There is a place for using grounding techniques to cope and this is valuable. There is great worth in learning to be able to stay present for others here and now. Probably a value to staying present in the moment for ourselves. Yet I wish there were more than grounding techniques because there’s always next time the voices come. Their apparent power stays the same.

Perhaps I’ll look to see if there are any books that explore voices and how to cope. I’ve pretty much been told that the voices won’t go away but if I keep taking my medication, I won’t lose my grip on understanding they aren’t real. I feel I need to find more than that.

I would be very interested to hear about experiences of voices that anyone would like to share.

Ginny xxx

Update long overdue!

It is a really hectic, up and down time at the moment and I’m much overdue posting. It has been hard to gather my words. I don’t make a habit of 2am posts – certainly not the best time of day for coherent writing – but I did not get to finish this earlier and it felt important to write before a big change coming up for me in the morning.

Belatedly, wishing you good things this New Year. I think I can just about say this since it’s still January! I’m praying that positive times and opportunities come for you and God’s blessings are shown to you to encourage you each day.

January is always a strange time, cold and empty in a way, after Christmas. Right now, so much seems unsettled, in the world, for my loved ones and in my personal life. I’ve written that before not long ago and of course it has not magically changed with the new year; if anything it seems all the more apparent. I’m trying to give generously of time and resources and friendship, for example to friends in need, and that’s how we encounter Christ in every day. But I’m feeling twisted apart inside because I come up against my limitations, what I cannot give and cannot resolve.  The family in my block, both of the partners seriously ill, whose Benefits have been suspended unresolved for weeks so they have no food, heating or electricity. My friend who has already suffered terribly and now faces more surgical procedures, my friend who has been homeless for almost a year and whose life may be in danger… to the thousands on thousands of people seeking asylum, the fear taking hold giving weight to insular policies that seem to offer protection but perhaps already spiral out of control. (The Mexico border “wall” seems to me to teetering somewhere between bizarre Divergent- trilogy-esque images and more than echoes of the Cold War era eastern block policies.)

I steer away from political issues in this blog but I think this turmoil hits ever closer to home. We hope that in times of hardship we come together and hold onto what matters most but I’m starting to think a certain level of hardship and fear brings only divisions. Then again, in my faith I believe somehow this must not be true because Jesus became Man to suffer and experience everything we suffer and go through. And He is all Love. Love came here, into the darkness and despair. Nothing changes Jesus. The despair and dark and hurt didn’t change Him, didn’t change love. So Love is here, Love suffers and struggles, but isn’t extinguished, so even in the hardest times, it’s love that remains – not division and conflict . I mustn’t lose sight of that.

This post has diverged somewhat from the update I originally planned. Probably to do with the fact that it’s 2am. I’m going to try to get back on track.

Since Christmas, I feel I have not been able to catch up at all. Usually, I have a big clear out, going through cupboards and drawers and so on and decluttering. I haven’t managed this at all. I’m frustrated with myself that I can’t keep on top of the housework at all. My emotions are bubbling over and have been for some time and I feel I have no resilience to cope with straightforward things. Saying that, maybe a lot is happening at the moment. I’m about to be discharged from the personality disorders community service I’ve had therapy in for the past 2 years. I’ve been trying to find support and things I can get in place for after my discharge. This has not been easy and actually it has been quite distressing because I have been promised a lot of treatment I haven’t had and I’m left with major mental health issues unadressed. On the positive side, I have made contact with a peer support worker and Recovery Coach who are going to help me short term and I think this will be really valuable. I have also signed up for some courses at a Recovery College, which I’ll post about (and explain) next week.

My physical health is not going through a great patch just now. The cold always makes the pain worse so that’s part of the reason. I have had to give in to the fact I need a wheelchair sometimes now and I’m looking at getting a mobility scooter. At least this will help me be less isolated and take a little stress away perhaps, because I’ll be more able to take part in things outside my home, like my volunteer work.

Practically at home, I am going rapidly up the wall at the company who should be repairing my boiler. I have had problem upon problem since November and now have no heating or hot water. I feel they have handled the whole thing terribly (7 canceled appointments for a start, having to phone 6 times to arrange a very simple thing, and so on, then them accusing me falsely of missing appointments). Ggrrr!! I know this is just part of life but in the state I’m in at the moment, I can’t cope with this, and feel very frustrated with myself for that. My emotions explode out of all control. Then I get angry with myself because so many people are going through so much worse.

A close friend has serious housing issues as well as a huge number of health problems. I’m trying to be there and do what I can. Cook hot food and support him with form filling and trying to get him a support worker who could help. It is a little way I can try to help and use the knowledge I’ve gathered from my own housing issues in the past.

I’m going to stop here. Later this morning is my last group therapy session and this will be a really really hard lot of goodbyes. I’ve been writing thank-yous and goodbyes, some of the hardest cards I’ve ever had to write. I’m sure I’ll write more about this last session and ending therapy, in the coming days. At the moment I’m struggling to find the words. I’ve cried so much today.

Ginny xxx

 

 

An evening of baking

What a week it’s been. I feel frazzled. Every day my anxiety has been hitting hard and every challenge exhausting, needing rest and feeling every chance for it is snatched away by the next problem. Therapy was really hard today and I’m very worried for someone else in my group. I told the PD Service and I don’t think they heard or recognise the danger I can see so clear and imminent for the person.

It’s Advent. It’s a precious time. It’s slipping away from me so fast. I really need stillness, to acknowledge what I’m feeling and to draw close to God in prayer. Every day passes and I have the same weaknesses and struggles.

Tonight part of me wants to curl up and escape – but I’m baking because some friends from my old job are coming for coffee tomorrow morning. I put some Christmas carols on and feel a little bit of peace creeping into my heart in the simple repetitive tasks.

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Ginny xxx

 

In the cold

I hate how sporadic I am posting and reading at the moment. Again I’m sorry though I’ve already said that so many times I know.

I’m having a really low time. I’ve too many horrible feelings about the abuse and about the PD service that’s meant to be helping me. I have never felt so far from my dad in what I experienced as a child being abused and what he did not know, that I thought he did know; what he thought was actually going on. It is not his fault, it wasn’t then and isn’t now, but I can’t stand the distance – which means more doubt and fear and was it all because of me and have I invented everything through my madness. I have never felt so trapped by repeating patterns with the service -that I thought would help me and thought I could trust – of being misled, let down, tricked, brought to the very edge then when I’m in crisis they reject me, do nothing to help, say it’s nothing to do with them, send me away so I cope the only way I can at that point of utter pain, which at the moment, means overdose or knock myself out with sleeping tablets. It’s too much like how my abuser made me believe I needed her and she’d protect me but I never received her care, which paradoxically I did need, only her total control and the terror of her threats and certainty of my evil, so I believed. Now the cycle repeats with those I should be able to trust and ends in the same desperate pain.

Even in therapy group today I felt so so far from everyone else. An intruder. Something wrong with me. Disconnected. Just watching. Deeply hurting for everyone else and guilty for causing them hurt and anger too, but at the same time totally out in the cold; so much needing to be heard, but everything and everyone showing how at odds my experience is with theirs and what it should be.

Ginny xxx

A very hard goodbye

This morning, one of the members of my MBT therapy group left, as it is the end of her time in therapy. It was her last group today. The MBT group is a “rolling group”. The group runs weekly, continously; members join (usually at least 2 people at a time) and are in the programme for 18 months, then leave. Usually, new members join to take their place and the group carries on. Sometimes new members join at other times. This means members start and leave at different times rather than a whole group doing a course together for 18 months and everyone finishing at the same time. Usually, at least 2 people would finish at the same time. It was a bit unusual that one person left alone today (someone else who would have left with them had to switch therapy groups earlier in the year).

It was a really emotional goodbye. I cried so much. A lot of us did. The depth of feeling at the point of saying goodbye was intense and in the group time passed much too quickly. At the start of therapy I would not have understood the depth of feeling for and attachment to another person that grows in group. She is a hugely kind person who has given so much more than I think she knows and I hope she does continue to know more of that good that’s in her.

I’ll write more later. Right now it feels very raw and surges of emotion are welling up out of the blue. It has been that way all week.

I need to get things done this afternoon because tomorrow I’m having a little fundraising coffee morning. It’s probably a good thing I have to be busy but I need to not push down my feelings totally either.

Ginny xxx

I’m sorry – I haven’t forgotten you

I’m sorry I haven’t posted here or visited your blogs in quite a while. I haven’t forgotten you. I know it’s not obligatory but I feel guilty being inconsistent ams not being there for others.

It’s been a few weeks of pretty big changes in my home life, family, friendships, work (or temporary absence of!), finances, therapy – not all the changes are negative however they are all demanding and not necessarily unsettling but all taking energy to work through. Physical pain is still having a big impact on me at the moment and I’ve needed to take things much more slowly than I’d choose. It used to be something I could deal with but now I’m not coping well. I feel as if I’m constantly saying this. It’s not am excuse but it is a big part of my life right now.

There is another event I’ve been struggling with, which has held me back from blogging. I had a really upsetting experience in an internet based support group and blog, in which I had previously trusted, thinking I was finding a reliable source of information, understanding and solidarity with other members as well as being able to offer support to others. I don’t think it is the right time to go into detail here about what happened although I will explain a little more in a future post. Please don’t worry – I’m okay and safe; I was never in any physical danger and I have ceased contact that was proving damaging. Fortunately, I had never divulged personal information like my full name or contact details. Also, just to be clear, this experience was absolutely nothing to do with this blog or any of the lovely people who visit it. It happened somewhere completely different.

The experience has had a big impact on me. I was very distressed. I felt a huge loss although also a huge betrayal. I got very scared of writing anything online, including in my own blog and in messages to anyone, although that is not necessarily rational. My obsessional thoughts were very triggered and the voices got loud. A whole range of feelings and thoughts spiralled out of control about how I trust other people, how I feel about getting support or not and being believed or not; perhaps most scarily, whether I’m harmful to other people without knowing…

On the positive side, the events have brought up lots of issues I need to discuss in therapy. They’ve led me to think about how therapy is changing the way I think. They’ve shown me ways I’ve started to react differently (for example, I did not follow through the compulsion to self-harm).

Most of all, it made me all the more thankful for the genuine and compassionate support everyone who visits this blog has shown me. It’s a rare and precious thing. THANK YOU.

I’m trying to get back into writing, gradually.

Ginny xxx

Bob and me and why couldn’t I say “no”?

WARNING: this post contains a passing mention of self-harm thoughts and a very brief generalised mention of abusive relationships

I’m sorry for this ramble that isn’t necessarily of interest to anyone. I really have to get this out and there’s nobody I can talk to. Kinda wish I could call someone but I don’t want to be totally needy and a burden on people.

It’s Friday tomorrow, which means group therapy. I’m really nervous. It’s the first group therapy for about 3 weeks following the summer therapy break. After the last therapy break (over Christmas) I found it hard to engage with the group again, stay present to mentalise and keep safe between sessions. The main reason I’m nervous this time is something that has happened between me and someone else in the group. Let’s call him Bob. I know that what happened is going to be talked about in group (because I talked it over in my 1:1 session earlier this week and my therapist told me it also needs to be discussed in group).

There’s a rule that group members should not have contact outside the group. It’s accepted that chance meetings happen or that we may see each other when attending the same hospital or GP Surgery  or other places and we aren’t expected to ignore each other if this happens, but we are not supposed to arrange meetings. One reason for this is that we should not discuss what happens in group outside group where not all the members are present. In particular we should not talk about other group members and if group members felt they or their issues were being talked about, this could be very upsetting and damage trust between group members.

“Bob” and I sometimes bump into each other because we tend to head off in the same direction after group. We sometimes bump into each other in the supermarket or in town because sometimes we go to the same church. Small world and all that. At these times we’ve chatted and I never felt that was wrong. This has happened with other group members too; we’ve discussed it in group and everyone has felt that it’s okay when that happens. Some members live quite near to each other so it’s somewhat inevitable.

In early June, I talked a bit more to Bob whilst we were in the waiting room before group started, because he was going through some practical problems that I had also had experience of and I was glad to be able to suggest a couple of sources of support for him. Then Bob asked me to meet him for a drink. It was his birthday and I knew that he does not have any friends locally and had been through a rough time. Straight away I didn’t feel comfortable with this. It was breaking the group rule. It could be breaking other members’ trust. I felt this was different from all the previous times Bob and I had talked, because this wasn’t a question of bumping into each other or waiting in the same room together for appointments; it was going out of the way to arrange a meeting. I was straight away nervous about why he was asking me. Plus going for a drink with anyone is hard for me, especially someone I don’t really know very much. Crowded places and lots of unknowns are difficult for me, raising my anxiety. I didn’t want to say yes. But I was completely unable to say no. I knew he would feel hurt and rejected and upset. I would be being nasty and rude. There was just no way in my head I could say the “no” I wanted to.

[I’m scared…]

Instead, I agreed but gave the proviso that it definitely be a one-off, just for a drink because it was his birthday. I also said that I wanted to be very, very clear that this was as friends. I have a lot of issues of my own and I do not find relationships of any kind easy. I am not looking for anything more than friends and I would not be able to give to that kind of relationship what I would want to. I said I felt silly and awkward saying that but just to make sure there can’t be any confusion I wanted to say it outright. Bob said he totally understood that and he felt the same.

So we met for a drink one afternoon. Well, that was the agreement, I thought. Except that Bob made it dinner, one evening, at a restaurant. And he insisted on paying for me. And it wasn’t a one-off, because from there Bob contacted me more and more. He wanted to meet again and again. He told me more and more that he had been thinking about me and praying for me and that he thought I was a very special person. And every time, I didn’t want to. I wanted to say no. But I couldn’t. I didn’t. And we met again, then another time, then another.

[I’m so scared even writing this. I feel I can’t breathe. I’m twisted up inside. Why?]

I couldn’t say no but I hoped it would stop. I tried to say. I said I was worried for both of us – that we’d get worried about the other and not be able to tell anyone, that we’d share things that we really needed to talk about (in group or with our therapist) and we wouldn’t be able to, that I wanted to share our meeting with the group, that I didn’t think we needed to hide it, that I thought he was trusting me and thinking of me differently from everyone else in the group and that could be damaging, that he was sharing things with me and not with the group and that could be bad for him (and the group)… I said these things, I think. Yet I let them be quickly brushed aside. Bob wasn’t dismissive. He wasn’t typically pushy or crass. Somehow though, I let my concerns be put away by what he said in response and I didn’t follow them through.

It was evident he cared for me very much and thought well of me. A lot of it seemed to be true Christian care and prayer and friendship. However, I knew it went beyond that. If someone cares for me, it frightens me. Bob would say in group that he had been thinking about me and it scared me there too. I wasn’t the only person he’d say it about but he seemed to say it about me more than about others. I know I get scared about this kind of thing and it makes it hard to know (or hard to trust myself when I think I know) if the other person is caring about me in a normal way or if something is unusual.

Scared turned to terrified when he seemed to care for me obsessionally. It sounds wrong to say that. It sounds like he did something wrong. He didn’t hurt me. He didn’t force me. He did nothing wrong. That’s what makes this harder. He did nothing wrong and he is not a nasty person and he is a kind, caring, generous, Christian man. But his contact became more intense. Even how he looked at me. He’d watch me so intently. He’d comment on tiny things in my appearance and say he couldn’t get over them. He made a few comments that freaked me out, like that he couldn’t resist me if I had long hair, things about wanting cuddles, that I shouldn’t let my father know his age [Bob is substantially older than me but – what??!!]… I wanted to run. His texts got more frequent. Several times within an hour at the end. I knew I could not be what he thought I was and couldn’t give him what he needed.

In the end I was scared enough that he was obsessed with me that I stopped it. I checked out my feelings searching online to see if people can be obsessed with other people and if this happens in relationships, knowing the answer really but having to check out whether it is something bad and whether it can lead to worse – because I couldn’t trust myself. Partly because he really was being so “nice” and not doing anything wrong. As well, I was scared he was telling me things that he wasn’t telling the group. I was trying to encourage him to tell the therapists and tell the group. I knew too much about pressure he was under and danger he could be in and help he might need. I knew it wouldn’t be safe for either of us. I felt that whenever I ended it or whether I just let it carry on, I would end up letting him down and not being what he so much thought I was and he would get hurt and the longer it went on the worse it would be.

I couldn’t trust myself. I felt so strongly that there was a sexual or at least physical attraction undercurrent, that he was attracted to me, that he wanted more and wanted me to be something I never can be to him, that he was becoming what felt like obsessed with me. It is so obvious to me now and it scares me now and scared me then but for so long I couldn’t trust this instinct and end the relationship.

[I want so badly to cut. I won’t. I won’t. I am determined to sit with this and try to stay present to feel in group tomorrow and not numb everything down by self-harming.]

Though I was scared I don’t think he knew it. I don’t think he knew I was uncomfortable because I said nothing and pursued none of my objections. Actually, I was dishonest with him, in sharing time with him but actually wanting to get away whilst he thought we had a connection, or were sharing something important. I feel so guilty for that. But then, we did share something. We are both Christian and we spoke often of God and hope and mercy and that is something I cannot share so fully with many people. It’s something I don’t really talk about in group, not yet anyway, and it’s a different kind of conversation. Genuinely we did share that and it was good. It’s not black and white and I don’t blame him and he did not do anything bad or wrong.

I know a lot of my fear and my feelings came from triggers in our conversations and relationship which probably would not have been triggers to anyone else. To the next person perhaps it would have been easily passed off or nothing important. For me there were so many triggers to my emotions and behaviour that reminded me of when I was being abused. That sounds terrible to say. It makes it sound like he manipulated or took advantage of me. All he did was kind. Apart from me not wanting it and feeling we were deceiving people and feeling scared. He didn’t know. But it’s how I felt. I started behaving and thinking like I did in the abusive relationship. It’s why I couldn’t say no. It’s why my feelings totally disappeared for me in the sense that I dismissed them all and followed only what his feelings and his needs seemed to be. It’s why I couldn’t say no, couldn’t trust what I felt, wanted to run but it was utterly impossible to do anything about it. I fell into the same patterns of watching and silence and trying to get it right, perceive his needs and his emotions correctly, trying to save him and keep him from danger. His obsession with me and his need for me reminded me – in my emotions if not in facts – of the abuse too. When my abuser wasn’t threatening me she was attributing bizarre powers to me, largely perhaps stemming from her own delusions (or perhaps it was all part of the plan of the abuse), powers I did not have, powers that I was to have because I was born at a particular time because she had planned it for a reason; she’d watch me obsessionally and intently, she’d have me keep secrets… I ended up emotionally right back there when Bob talked about how good I am, how he thought about me, how important it was we shared these conversations separate from the group, how it should not be shared with anyone in group because that would get too complicated, when he so intensely contacted me and needed me.

When I did finally end it, I told the service because I was so afraid what Bob would do. I am not so arrogant that I think contact with me can matter that much to anyone, but I was sure that he’d interpret me ending our contact as total betrayal and breach of trust. I know those kind of feelings put him in danger, because of what he’s discussed with me both in group and outside. I didn’t want him to know I was scared, because of a particular thing he shared in group once. I thought for days about how to do it. I told the PD Service right away that I’d ended it and told them I thought he’d be in danger. If the service hadn’t been there and I hadn’t believed they could try to keep him safe, I would not have dared to end things.

I’m scared for group tomorrow. What’s going to happen. How it’s going to affect Bob when we have to talk about it. If I admit I wanted to stop the meetings, or that I had worries, it makes it sound like he forced me. He didn’t do anything to force me. So many times I could and should have said no. But I have to be honest. I’m scared how what’s happened will affect other people in the group and what they’ll feel. They may be hurt, they may feel betrayed, angry that rules have been broken and trust has been broken, they may think we were trying to do something in secret to exclude them. I think everyone will lose trust. I don’t know what Bob feels about it being discussed in group and I don’t really know what he feels about me having ended contact. I told him that I had told the service, but I don’t know what he feels really. I just feel so sure he feels totally betrayed. I’m scared he mightn’t come back to group. I’m mainly scared about him and about the rest of the group and how they’ll feel but I’m also scared how unable I was to act on my feelings and say no.

My head is imploding with all these feelings. Maybe I’ve really turned the proverbial molehill into a mountain but for some reason this whole situation is leading to really strong unbearable feelings for me. I’m fighting so so hard not to self-harm tonight. I’ve been trying self-soothing, trying to do creative things, trying to do practical things, hot drinks, texting a friend about something else, trying to take the focus away from the emotion and away from myself. Then I wrote this. In a minute I’m going to try a weird approach that just occurred to me – I’m feeling totally nervous and wound up so maybe if I watch a DVD that makes me just a little bit on edge and in suspense it’ll give another direction for the feelings and get some of them out. Not sure how that’ll go down and it’s just a thought that occurred to me, but here goes! A couple of episodes of Grimm should do nicely.

Ginny xxx

Managing money with Borderline Personality Disorder

I am bad with money. I panic about it. I’ll panic for days beside being able to sit down to look at my financial situation. Partly this is because it’s usually so dire and it’s a constant background stressor in my mind that sends me to extremes of distress when my thoughts are in the foreground and that I block out at other times. I even find myself dissociating from it. Additionally, there’s the fact that I find it hard to deal with figures and hold them in my head and follow steps through when I’m budgeting. I always did find dealing with numbers hard, even before I was particularly ill.

However, with help, for example from my lovely support worker or my very close friend L., I can list out all my money coming in and my expenses and I can draw up a budget based on that – even though the outcome for months has been that I don’t have enough to meet basic expenses. It may not be workable but I can at least get things down on paper.

It’s very hard for me to get to that stage but that’s not the biggest problem. The biggest problem is when it comes to spending. I have been very bad with money and very impulsive and out of control and I really want to change that. I must change that if I’m to stay out of debt and all the spiralling material and mental consequences.

Even if I have made a budget plan, when I’m most ill I do not stick to it. Best laid plans to waste, as the saying goes… When I dissociate, or flip, I am no longer in control. It’s my responsibility and I don’t want to deny that but I’m not mentally in control. I make decisions and act on impulses and spend money rashly. I act on a temporary conpulsion to buy things I’d never normally touch. Sometimes I know it’s temporarily squashing down the unbearable feelings. Sometimes I’m buying a different life. Sometimes I’m buying for one of my “others” or it’s the “other” wanting and needing it and making the decisions. Often I’m too far gone to have any awareness of what or why I’m doing it and afterwards I see what I’ve bought and have only a dim recollection of why and when i did it.

Afterwards, infallibly, I feel terrible: guilty, disgusted, that I’ve been selfish, greedy, confused, angry with myself, scared, an absolutely unbearable feeling I can’t describe. There’s dread there. There’s shame – a lot of shame. There’s panic. There’s something more. Yet I still do it. There’s always the next time I lose control and dissociate and spend again. I’d call it a kind of manic dissociation that leads me to spending (it leads me to impulsively angry and needy actions too), as opposed to the frozen and numb dissociation that accompanies self harm or the safe dissociation of slipping away from this world into the imaginary one in my head. The manic dissociation is probably the most socially dangerous.

I really want to break this. I can’t stop the dissociation and impulsivity yet but I’m trying to find ways to reduce its impact. It’s become very important right now because, having had problems for nearly a year with my disability-related Benefits, with my support worker’s help we have now resolved the problems and I am due to receive some back-payment of money I should have received some time ago. This is absolutely great for me because it means that I can pay off my arrears and make a stable budget going forward and it looks as if finally I will have enough to live on! I am so so so thankful for this. It also means that I have a lot more money than I usually do (even if only temporarily til I pay the arrears). This is scary because I know that I cannot be trusted with it.

I texted my support worker straight away about the back payment and he’s going to call me this afternoon so that we can make a plan, pay the arrears and make an appointment to look at my budget again now that I’ll have a bit more money coming in. I’m hoping we can come up with some things we can do so that, at the times I’m being impulsive and not in control, I can spot this quicker and ideally, my access to money could be strictly limited at these times. I’m not sure how we could achieve that but maybe he will have ideas.

I know that ultimately I need to get to the root of what’s causing the impulsivity and learn to take back control of my actions at those times and stop the dangerous behaviour. I’m hoping therapy is going to help me find this, though it worries me I’m so far through therapy and still I don’t think I’ve changed in this area. Until I can do that I need to try to stay safe and be as responsible as I can.

I’m interested to know, if you or someone you know has Borderline, or indeed any other mental health condition, does it affect how you / they feel about money and how you / they can manage it? Is it an area you feel vulnerable or find stressful? In all the years I worked at a hospital and in the various services I’ve been seen in, it isn’t talked about very much.

Just recently I saw a useful self-help booklet at the PD Service I’m seen in, on these kind of issues. I’ll share here the booklet here later today or tomorrow (I think there’s an online version). It was about the first publication about managing finances which I’ve come across targeted specifically for patients.

Ginny xxx

 

All change…

Officially, my last day of work at the department store was yesterday, although as I am currently signed off sick, I was not actually in work. Last week I had my exit meeting with my manager (handing back my ID and keys etc) and said goodbye to my closest colleagues. I’ll be popping in again this week to say bye in person to a few people I was not able to see, and deliver some notes of thanks. They gave me a reed diffuser in a summery freesia scent, which is already providing a perfect calming aroma in my lounge, as well as a card wishing me well. I hope that I keep in touch, in particular with a few people from the department where I worked. We found a lot in common in the months I was there.

So it’s all change again now. I’m sad to leave. I’ll miss people – colleagues and some customers. I’ll miss the creativity. I’ll miss some aspects of the routine and order. I feel bad for having to go after I’d got to grips with things, received training and my colleagues and manager had put time in to show me what to do and support me into my role. They are all incredibly understanding and caring over my situation that has led me to need to leave and that helped me a lot; I still feel bad for leaving the team and leaving more work back on other people. I guess the good side of that is I must have had some confidence, in the end, that whilst I was there I did manage to do some good. Before I started this job I felt utterly useless, unable to trust that I could do any good because my previous employer seemed to find me so deficient. I see now that at the store I gained a tiny bit of confidence, as well as knowledge.

I’m amazingly anxious and I’m not quite sure why. I’m feeling it physically and feeling shaken and near crumbling and crying and really wishing someone could hold me and tell me it would be alright. I don’t know exactly what is causing this. I’m teetering on the edge of dissociating but I’m staying on this fragile edge instead of slipping over. On the edge are raw and exhausting emotions and I’m spinning and spiralling rather than falling into the safety in the hidden mist of dissociating. It’s painful. I’m trying to use my grounding techniques and self soothing and trying, if only in tiny moments, to avoid falling over that edge. Dissociating may be a relief but the pain it causes me afterwards, and others during, is even worse.

I’m trying to find the way through the next steps now that I will not be working for a while (on my GP’ s and support worker’s and others’ advice). I’m confused about all the forms I have to complete and assessments I have to go through. I’m scared of how they’ll judge me. Scared of whether I’ll manage financially. Scared of so many things that are making me feel trapped, not believed, going into the unknown…. I’m so thankful I have my support worker guiding me through, otherwise I’d implode and go back to shutting down and hurting myself out of fear and pain and flashbacks. I’m so thankful I’m not alone. I’m trying to find ways that this instance of having to leave work – because I’ve lost or head to leave more jobs than I can cope with counting, for the same reasons every time – is not yet another repeat of this cycle and is not only another failure, loss, or let down to those who have tried to help me. I’m trying to find ways I can make this different. I have therapy now. I have my doctors and support worker. I have a home. God willing I am soon going to have some more social interaction and a place to contribute something, in a mental health charity I’ve been referred to. These all count for a lot in stopping me going so deep over the edge and now I pray I can build something good from this place.

Ginny xxx